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Jay starts to feel really bad usually around 7pm. Last night was bad. After I brushed his teeth he had a look on his face like he was in pain. He has a hard time explaining how he feels which is frustrating to me because I don't get it. He did say everything hurt - his head, throat (Not like...

My dad was "unofficially diagnosed" with ALS on 9/12/16 by an ENT due to tongue fasciculations. He saw a neurologist on 9/20 who ordered extensive bloodwork, as well as other tests. On 9/22, an ambulance was called due to him being incoherent. He was then diagnosed with double pneumonia with...

Hello everyone, My name is Chad and I'm 23 years old. I have no history of ALS in the family but for four years going on five in February have had muscle twitching cramps and tremors. I went to the Mayo Clinic in Rochester in October of 2013 and again in December for my heart issue and had an...

My dad was diagnosed with ALS about a year ago while I was living in out East and they were in the Midwest. I moved home to be close to family, help my mother (as she is helping with my dad and brother with Cerebral Palsy), and spend time with my dad while he was still in good health, or as good...

Yesterday I had a company come get my trilogy. The alarm kept going off, and the mask was leaking a lot. I called the company to have someone come to the house to fix these problems, but they told me to bring the machine to them! I said no, and they were to call me back, but they never did...

Hello if anyone can help it would be really greatly appreciate it. Im currently 18 years old and I've been showing als symptoms. I started to notice at the age of 14 maybe 15 that I was weak really weak and now I'm 18 and still very weak I can just lift 80 pounds on the bench press while all my...

This has been a horrible week. My back went out a week ago Friday. Since then the spasms have come and gone and I've muddled through. I know others here struggle from back issues as well. Another "lovely" side effect of this danged disease. Yesterday I was feeling pretty good. Headed to...

... and I still miss my mum everyday. I still cry when I think of what she went through. I still feel so sad that there's still no cure. Just this week I had to take time off work as I fell back into a deep place of anxiety. I just miss her so much and I am considering returning to...

Hello! My name ist lisa and im 28, i have 6 children and number 7 is on the way ( not planned, 5 weeks pregnant) first of all. my englisch is not really good, i am sorry for that! it started 5 weeks ago with muscle twitches ( the move all around my body, in my face, in my fingers, legs...

Okay, I have had a full month past my husband's Dx of positive attitude. Yes, I know many PALS and CALS have had years of it. Thing is, who wants to be either one? We know the answer to that. I was looking at pictures of myself as a kid, and I felt sorry for that little girl who grew up to have...