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My grandmother was almost 90 years old when she showed the first symptoms of ALS, at the beginning none thought it was very severe. At first we thought it was aging, then ictus or maybe parkinson's, she even showed sign of recovery for a moment. At the very beginning it was just pain from an...

I don't know where to turn. I have been grieving for 5 years now. The day my husband of 25 years was handed a death sentence with a diagnoses of bulbular onset als. My life has forever changed. I cannot function without medication. He passed away less that a year after diagnoses. It hurts just...

Jan 20, 2016 my Hubby was diagnosed with this horrible disease called ALS....through it all, he's never complained...not one word....he always says.."why complain, it is what it is...I can't change it". We've been blessed with so many great days..made each other laugh...instead of cry...and even...

My sister was diagnosed about a year ago. We had a family reunion this summer, while she could still communicate yes/no, and her facial expressions helped us read her. Her ALS has taken over her upper region and she can no longer eat, speak, or show facial emotions. She has a feeding tube and...

Okay, my PALS is still pretty darned mobile (he is driving himself to pool exercises 3X a week), He is doing pretty well emotionally at the moment after a bad patch last week. Still, I am exhausted, like sometimes I wonder if I need to worry about falling down, not just him. Work is hectic...

Matt just made the OT cry. His hand strength was 45 last visit. He told her it would be about 5 today, and I don't think she expected him to be right. The meter didn't even move. I found myself comforting this wonderful woman who has been cheering for him for 3 years now. She was shocked...

First post, since I just found this site. I'm really worried that I might have ALS with all the symptoms I have been experiencing for well over 5 years now. This past December (2016), I found out that I was positive for Lyme's after numerous tests were conducted by my Neuro. and my primary care...

Normally, I go with the flow but just had enough today. So a little pity party this am.Losing ground each week and now a frozen shoulder. So painful. So had a good cry. My poor husband all he could do was hold me and said let it out. It's out of my system now, so onward.

Hello, I'm sorry to be posting here and taking up some of your valuable time reading my message. I'm concerned and very afraid that what I'm experiencing could be the first symptoms of ALS. My health scare saga began about six months ago, and I'll try to summarize it as briefly as possible...

I would like to share my mother’s story with you in the hopes that I can receive advice regarding my family’s situation. This might seem like a very ‘dry’ explanation of the situation, but I assure you that there are a lot of emotions involved My aim is to give the clearest and most objective...