cramps

  1. N

    C9orf72 Found on Family

    Hello to everybody, I haven't post in this forum for almost 3 years, but I still fight with my symptoms. To remind you my family situation, I am male, 42 years old. I have lost two uncles in the age of nearly 50 from ALS. They were brothers from my mother's side. Also her father(my grandfather)...
  2. J

    Getting really scared.

    Hello people, thanks for taking your time to read this and I hope you are enjoying life as much as you can. Before anything I must say that I read this post: https://www.alsforums.com/forum/do-i-have-als-als/26591-read-before-posting-answers-common-concerns-about-possible-symptoms.html But I...
  3. Maoko

    How to tell teenagers?

    Hello everyone, I 'm french, my father died of als in 2015, he had done genetic testing but the results went after his death and then nobody told us anything. We all assume that it was sporadic. Then, in 2016 my sister went under a IVF procedure and needed the results, bingo: c9orf72. At this...
  4. W

    Our Story so far

    Hi everyone, firstly thank you for accepting me in to the forum. I am here to learn a bit more about ALS and to be able to talk to others that are or have gone through this process as it feels such a lonely place to be sometimes. It all started back in May/June 2017 with my partner, who was...
  5. M

    lost and need advice / opinion

    Hi everyone, I’m Maxime from France and I’m 39, have a past of intensive sports practice (but I smoke), tall and apparently strong – 1,93m, 110kg. First, I wanted to congratulate you for your wonderful empathy and the time you take to support those who desperately need it. It's pleasant to see...
  6. V

    Scary symptoms, waiting for neuro appointments

    Hi everyone, I am a 30 yr old who has been having some worrying symptoms for the last 5-6 months. I have been to my GP who referred me to a neurologist, and I have an appointment in a couple of months. I post hoping that someone has some input on my symptoms, and to see if they sound familiar to...
  7. D

    31 years old, ALS symptoms

    Hi guys, I am getting increasingly worried regarding my symptoms and i would like some advice. I will keep this thread updated for others consideration regardless of my diagnosis. It may help to convince others they do not have ALS! So I'm 31 years old and in pretty good shape. I was a gym guy...
  8. B

    "Interesting case", "atypical presentation", no official diagnosis.

    "Interesting case", "atypical presentation", no official diagnosis. Good afternoon, and greetings. 32 year old fit female labeled as diagnostic mystery. 10 months ago--twitching all over body. Intense for 2 months, then left side predominated. Severe occipital headache, neck pain, pain in...
  9. A

    As every other person that posts here, I’m freaking out.

    Hey guys and gals. I want to first say thank you so much for taking the time to read this and others posts on this subject. I know it can’t be easy for all of you, and it has to get tiresome. Also to say god bless to each and everyone of you that is affected by als. I’m 23 and a male. I get...
  10. A

    I don't know what this is...

    Hi, Maybe I'm being hypersensitive to everything that's going on in my body - maybe I'm just getting "old" (I just turned 32) and don't know how my body is supposed to feel. I was running pretty well the last few months, training for my half marathon. I sprained my ankle and took about 2...
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