cpap

  1. G

    Need medical equipment

    Does anyone in the Portland, Oregon or Southwest Washington area selling their CPAP, Cough assist, and Suction Machine? My husband just went to his 1st ALS clinic on Monday, January 20, and these are the clinics recommendations that he needs now. I received a call from a medical rental place...
  2. B

    Entertainment

    I'm wondering what PALS and their caretakers do when the later stages of ALS hit? What do you/they do to stay mentally alert and active. I imagine it must get boring watching TV all day. Any ideas are very helpful. My PALS has trouble talking, is on a cpap (sp?) machine most of the day, is...
  3. shelleynshaggy

    My strength is crumbling FAST...

    Feeling down - I am so angry with EVERYTHING! I feel so bad - Jim is having a hard time and I feel angry with him. He is saying he is having problems opening and closing his eyes (okay not angry on that one.) He is back to getting up several times a night - but having problems getting in and...
  4. shelleynshaggy

    I can't stand this anymore!

    Tonight Jim came down stairs and our six year old was crying. I asked him why she was crying (he was just up there) he said no reason. Minutes later she came downstairs crying - daddy kicked her in the face (she is sleeping in a tent in the living room.) When I asked what happened he said she...
  5. E

    Timeframe of the disease

    Tried to reply to my last thread to keep all in one place, but it has been closed. I have done a good job staying off this site for the past few weeks. But these damn symptoms won't go away! Have had 2 EMGs both were "normal" although the second one picked up rare MAUPs. I haven't been able...
  6. D

    ALS Patients Traveling to higher altitudes

    I am a caregiver with a best friend who has bulbar ALS. I need help so she can travel to a higher elevation to see a grand-baby's birth! K has support of CPAP at night (yes, I know it should be BiPap but I can't write the medical order to change it- I am working on it) we can use supplemental...
  7. U

    Sleep Study Quesrions

    I got in early for my sleep study and the results were apnea and 70% o2 sat rate. The respiratory therapist asked me if I wanted to come back for titration of CPAP or positional training. I forgot to ask and am curious if these two events are going to happen over time or one cancels the other. I...
  8. W

    Is this alsqq

    To all, I thank you for your time and appreciate any response. I am hoping that they find some effective treatment very soon for this very cruel disease. My symptoms started almost four and one half months ago. It came on suddenly with burning and pain that migrated though out my body, ankles...
  9. jellis86

    Bipap mask and lip biting

    I was fitted Tuesday and have the Quattro FX. I have searched on here and there is quite a bit of information about masks and that particular one seems quite popular. I agree with those on here, it's light and quite comfortable. However, sometime during the night I bite on the inside of my...
  10. NotALS!

    strange breathing pattern

    My breathing has gotten difficult at night so now I have a cpap with oxygen. I get winded easily but I seem to be ok during the day. I'm getting over a cold and couldn't use the cpap because of congestion. I thought I was a goner but my breathing suddenly got easier during the worst nights! As...
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