cost

  1. zoohouse

    It has been a while

    It has been over 2 months since I last visited the forum and I see that we have lost so many more of our dear warriors. I was having some difficulty with the losses, and then my own body gave out on me. I have been Tim's sole care giver since he was diagnosed in 2012, but have been blessed...
  2. S

    traveling

    Hi, this is my first posting but I've visited the forums often and found them to be a source of comfort - just knowing there are others who are going through similar trials and challenges. Thank you for being out there. My husband was diagnosed a year and a half ago. Since February, he has been...
  3. G

    BioVerity, a vitamin supplement

    This is being discussed in the fb group Research on Motor Neuron Disease. A couple of PhD's at McMaster University in Canada have been working on a vitamin supplement for over 15 years. The mix of 30 over the counter vitamins and supplements, which seems to prevent and reverse damage to cells...
  4. C

    Two story home

    Has anyone made a two-story home work or is it necessary to have bedroom, shower, living space all on one level? Our bedroom and bathroom (with space for shower modifications) in on the second level. Modifying our lower level powder room into a bathroom with roll-in shower, etc. would be...
  5. Chumpy

    Best Tablet for PAL

    Ok looking for the best tablet that will work with PAL. One that is easy to communicate with and use when hands are having issues. Maybe one that can handle being used for communication application too. LET US KNOW THE PROS AND CONS OF WHAT YOU HAVE FOUND AND PREFER, cost effective too please...
  6. D

    40% savings from Medicare on my vent???

    Shh, don't tell my DME because if this is a mistake I don't want them to fix it! Last year the breakdown on the cost of my vent was: DME billed Medicare $3800 Medicare allowed $1500 Medicare paid the DME 80% of the allowed amount, 1200 I owed $300 before filing with my supplemental insurance...
  7. C

    B12 Methylcobalamin Injections 25 mg daily

    Wondering if anyone has been taking Methylcobalamin injections and what is there experience with it, cost, effectiveness? I have a prescription from neuro but have not had it filled yet. One "sterile compounding" pharmacy told me $1500 a month, another told me $300 a month and still waiting on...
  8. R

    Developing new issues

    Dear All, I was on here sometime back and have tried to ignore every possibility that i might have an MND, but unfortunately i have been pushed to come back on and request all of you to bear with me and answer a few simple questions im concerned about. Mainly my problems started back in Aug of...
  9. P

    Gene Test

    before anyone sends their blood to a lab for ALS Gene Test, Do some research on the Labs and the cost of the test. The Day I was diagnosed the doctor suggested I get a gene test by Athena Labs. I got a bill for $10,200. This was a complete surprise. I started researching to find there are...
  10. M

    Medicare pays?

    I'm looking for the magic words that will get Medicare to pay for a PEG pump and the feed and hydrate bags that go with the pump. Seems that medicare is very conservative and doesn't like paying. Although I think they are paying for the same feed and gravity feed bags. Are the hydrate (double...
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