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In a previous post by Nikki, she made us aware of an expansion in access to the Online Exchanges being granted to veterans with Honorable Discharges. Here's her post... https://www.alsforums.com/forum/military-veterans-va/39259-online-exchange-shopping-benefit.html I followed instructions and...

I cannot believe Medicare doesn't cover in-home care for ALS patients. We have just begun research for what it will cost us out of pocket. Is $20/hr through an agency reasonable?

I have been prescribed Riluzole for my ALS diagnosed 7/2017 but have not filled due to cost and side effects. What is your opinion of taking this drug. Are others taking? Do they have any side effects?

I am creating this thread as a discussion on how to get Edavrone in Canada, and what I have discovered. Here is what I have learned so far. Mistubushi Tanabe Pharma is the creator of the drug. It is ultimately up to them if they want to sell the drug in Canada. If they do, it sounds like...

Hi, I'm Elisabeth and I'm not exactly new. I've been lurking this forum for a while now but this is only my third post :) As the title says I live in the beautiful west cost city of Gothenburg in thee kingdom of Sweden :smile: I'm 41 years old and was diagnosed with ALS a little over a year...

Nowadays it isn't easy to find health plans with no caps on home health coverage, but if you're covered under a federal employee HMO plan, you should check the plan documents to see if it is a "federally qualified" HMO. No limits on the frequency or duration of visits are permitted on home...

My paternal Grandmother died from ALS when she was about 59. Her son was also diagnosed with ALS in his seventies but died from a stroke. My dad died at 83 with some form of dementia. My brother died last year from ALS at 60. As far as I know there has not been any genetic testing because of the...

Hello Everyone, Although I have had ALS over five years, I am a new member to this forum and would like to introduce myself. I was diagnosed back in February 2011. Physically, from the chin up, I am doing well. I can still speak – albeit softly – and eat which I am very grateful for. South of...

I finally had my appointment in the ALS clinic on Monday. I met with my case worker, OT, PT, and someone from the MDA. I now have what seems like a ream of paperwork to read through. I guess the good news is that they hope to start my Radicava (edaravone) infusions middle to late August...

Why was the Thread ("Does anyone READ this...) in the PLS sub-Forum abruptly closed after Cammarak posted a reply 6/14/17 at 9:12 PM? (Yesterday) The post referred to the well established (accredited) PLS protocol by outstanding Neurologists as... BS! Cammarak referred to the Dent Neurologic...