confused

Hello, all! Let me start by saying that I admire the strength and care that you all seem to show through what can only lightly be described as a trying time. Truly, you are all an inspiration to people suffering, and those whom have even the smallest questions and feelings of (possible) ALS/MND...

While riding my Harley, I swerved to avoid hitting a deer, lost control and landed in a ditch, severely banging my head. Dazed and confused I crawled out of the ditch to the edge of the road when a shinny new convertible pulled up with a very beautiful women who asked, "Are you okay?" As I...

Hello everyone. This is all very new to me even though I feel as though I am getting a crash course in ALS care. My beautiful mother was diagnosed with ALS in October. She is 77 and lives with me. Her progression has been so fast I am having a hard time keeping up with all she needs. I have...

My husband Jim started losing his voice over 2 years ago.We have seen numerous doctors. Next he started having swallowing issue's We saw 4 neurologists and had many test.The last doctor ask about military service.He was in the Air Force.We have been lucky to get so much support so fast.The...

I have been reading posts on here for about 3 months trying to figure out what Is happing to me. Any an all responses would be Appreciated. I’m a 40 year old male about 6-7 months ago I would wake up with this Weird sensation running down my left side.(it seemed to happen right after I feel...

Hi -Sorry to post yet again but I am still very concerned, my symptoms have persisted and I also have some new ones and looking for advice. I was not impressed with the first Neurologist I saw and she discharged me even though I had very real and visible symptoms, Stomach twitching (constantly)...

I don't use my wheelchair yet. It's parked in my master bedroom. I have a basic question about keeping it charged and the charger itself. I have left the charger unplugged and the wheelchair disconnected from the charger. Every 10 days, I plug the charger in and plug the wheelchair into the...

A mom, widowed for the past year, is doing an admirable job of raising her 7 year old daughter. Each night, the mom has developed the routine of lovingly tucking her daughter into bed, reading her a bedtime story, and kissing her good night as her daughter drifts off to sleep. One night...

Hi everyone, I have received an unofficial diagnosis and am losing my speech quickly, along with lots of respiratory weakness and breathing issues. My voice appears to be going first (especially tongue weakness) and I was wondering how long it took those who have lost the ability to swallow to...

Hiya guys, New to this forum thought i would introduce myself. I have enjoyed reading all your helpful posts. I was having a nosey round but couldnt find an answer to my query specifically so while saying hello i thought i would ask here. So the very short version of a very long story.... i...