clothes

My arms are getting so "heavy" for lack of a better word. I start folding clothes and can no longer do it without getting extremely uncomfortable. When holding a phone, I have to change hands back and forth as to not go insane from the heavy feeling. Anyone else experience this? I was...

Hello, I'm new to this site, and to ALS.. I'm 35, and been diagnosed with hypothyroidism and hashimotos about 12 years ago, narcolepsy ab 7years ago and last year I was diagnosed with dysautonomia and POTS (postural orthostatic tachycardia syndrome) those are auntonomic nerves system disorders...

My father has ALS/FTD. He is currently wearing depends 24/7 for his incontinence. Every night he soaks the bed and himself. Shirt and pants included. Does anyone have any tips or advice? We have the washing machine and dryer running all day trying to keep up with the bedding and wet clothes...

Hey guys, I posted on here a couple of months ago with my story, and booked and appointment with a neurologist, finally someone cancelled out an appointment on Tuesday so I don't have to wait another 3 months it's already been 2. But since then things have progressed and kind of freaking out...

Pretty new here, I read on occasion but never post. My sister, husband and myself have been caring for my stepfather for about 7 months now, he is rapidly declining and very stubborn about everything and seeing major repercussions from it this weekend. The nurses and therapists have been...

I was diagnosed with PLS about a month age - after 11 years of seeing neuros up and down the east coast with no diagnosis. Now I realize physical therapy is my only chance of slowing the progression down. I tried provigil,nuvigil, amantadine , recently baclofen and am allergic or...

Hi all Sorry if this a long post but i haven't shared it and need to. I have always been a worrier, one of those people who has to find something to worry about! For the last year i have had pain in my legs, particularly my knees on a night and morning. It takes me time to losen up in the...

In 2009 I started to have bad headaches. If you were to split my head into quarters, the pain was on my left front side across forehead and behind eye. Neuro diagnosed migraines. Aprox 1 month later L eye lid droopy and was unable to open. I went to a Nerooptic: treated with medrol dose pack...

I've found that a Rollator walker is a valuable "work horse" for anyone that needs to use a walker. Unlike a metal walker, this walker device has a basket for carrying and storage, a seat if you need one (with the basket located underneath ) and bicycle handlebars and handle breaks. By...

Sorry, I just posted this in another section which may have been incorrect.... Hi I am new to the forum. My wif (Penny) was diagnosed about 10 months ago. She is 54 years old and is confined to a powered wheelchair. She has no leg mobility and arms are 80% gone. I work until 5pm. Her mother...