Hi, I've been posting on here on and off since my brothers ALS diagnosis last July. He's only 40 and has a toddler and a new baby only 8 weeks old. We're all devastated and I've spent a lot of time researching treatments and therapies.
His situation at the moment is that he's being given IVIG...
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Hi,
I post my update.
Thanks to everybody for the support!
As you know I was give a MND diagnosis last month.
So I make an apoinment for second opinion in my country. It was yesterday, they make a lot of test, today I received the results.
1. Brisk reflexes - overall, positive bilateral...
Hi everyone my name is Clarke, I'm really sorry to bother you all I just have a quick question that hopefully somebody could help me with. I've literally had a constant non stop twitch in my left quad for nearly 13 months now, in the last 5 months the same muscle also becomes hard and stiff. I...
Have had a spastic/rigid muscle above the knee for a while now. But now I'm having a problem with foot drop/drag - about two months. Have tripped and actually fallen twice, but most of the time it just causes me to stumble.
Went to family doctor - no noted issues, referred to neuro.
Took a...
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I don't contribute much anymore but I have read some threads about clonus here and elsewhere. Clonus does not occur on it's own. It has to be triggered in some manner, like a strike on a reflex point. There is a You Tube video demonstrating clonus... any Neurologist who may have watched it is...
At night when spasticity is at it's worst do you find as the baclofen is kicking in -
That your toes begin to dorseflex up and down? Thats how i know the spasticity is getting better. On the one hand it is good - things are loosening up, but bad because the toes flex so violently that i swear...
Hey guys,
This is my first post here but I really needed somewhere to talk about my current situtation. As a disclaimer, I have had health anxiety in the past.
My symptoms probably became noticable about a year ago. I was a weightlifter in college about a year ago and one day after a...
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Hello everyone, I too have read the stickies and have a question about my symptoms.
I must say that muscular dystrophy runs strongly in my family and that while I, at 33, am still fairly young to have onset symptoms, obviously we are not ruling this out. I am awaiting gene testing for this...
I decided to write this message as I understand that my first post in the DIHALS section has caused some concern among some of our undiagnosed members. The purpose of this post is to clarify a few things and to explain why you should not compare your situations with mine.
To begin with, at no...
Hi, I have been under supervision, for 4 years now. It all started with noticing that I could not lift the pinky finger of my right hand, and slowly it has spread to the entire right hand. I can not lift the fingers of my right hand (say no more than 10 degrees from vertical down, and with some...