clonus

  1. 1

    Clonus?

    I believe my last thread was closed. And for good reason. Been going through “symptoms” for about 2.5 years now. Twitching, cramping, etc...So, the longevity of it all does play against the odds I know that. I was told BCFS. But for the longest while now, a few months and counting, I’ve...
  2. M

    Concerned about ALS

    Since January I have had body wide twitching which gets worse at night. I don't have it all the time, it comes and goes. My left side of my body seems to shake. When I curl my toes sometimes my left will shake but the right toes don't. Same with my left hand, if I squeeze something it will...
  3. D

    Should ALS be on the table?

    First I want to thank the administrators and moderators of this forum for providing this resource despite battling a terrible disease. I send all of you much respect and admiration. I have read the stickies in this forum and will try to abide by all of your rules. My situation is that I am...
  4. T

    Deeply Concerned

    I want to keep this thread short as possible- tough to do since my story is long. I have read all stickies and have in fact been lurking on forum for months. I know everyone here my name as creepy as it sounds. I have never felt so deeply empathetic toward a group of people as I now do toward...
  5. M

    Vast symptoms... worried about Bulbar onset.

    I was recently told by my internist that I most likely have Myasthenia Gravis, ALS, or something similar. She is not thrilled with my care thus far by my current neurologist and spoke with the chief of Neurology at the University of Utah, who specializes in ALS, MG, EMG, etc. He has agreed to...
  6. A

    Still curious

    Hi I had posted last week about being curious about my symptoms. I have had several people tell me that I do not show symptoms of als but I am still full of doubt. My twitches are still there but there are longer periods of time that I don’t feel them for the passed week I suppose. The fear i...
  7. Y

    26 Year Old Male Expecting Diagnosis

    Hi, long story, so bear with me. About 6 months ago I had an unexplained weight loss of about 30 pounds in about a month. I chalked it up to anxiety induced weight loss as I was dealing with some very stressful situations in life at the time and didn't think much of it. About 4 months ago I...
  8. K

    Worried about weakness

    Hello...I have an appt with a neuromuscular specialist next week, but I was hoping to get some opinions before then. I was walking to my son's school about 6 weeks ago, and I fell forward when my left knee buckled. I was thinking that it could be my lupus acting up. At that time, I could walk on...
  9. G

    Limbo and emg

    Dear all of you in here! I Write you here for the 3rd time as I am still in the same situation where Im still in and out of doctors Offices With no Clear conclution. Since Im now set for a second opinion I would like to ask for for advise and also if anyone here are good in Reading emg...
  10. H

    Update

    Hello everyone, Just a quick update. Still no diagnosis or name for what is going on with me. Does anyone know if Baclofen suppresses the reflexes. My reflexes are always changing sometimes hyperreflexive and other times normal. I'm a mystery what can I say. All I know is that the twitching has...
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