There are a group of Pals trying to organize protests throughout all of the United States on 1/6/2014. We believe these protests are necessary to achieve many different objectives and goals which are: Expose the incompetency of researchers in the field, Expose and trace where all this supposed...
Hello Everyone,
I'm new here and I'm interested to get update, questions, information and answers on medical treatment, doctors and clinics . I hope this forum helps me to get what I'm looking for.
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Immediately upon being diagnosed I signed up for multiple clinical trials. Three rejected me because I was not close enough to their clinic, I met all of the inclusion criteria and failed none of the exclusion criteria. I understand that there are limited slots available and the clinics want...
My dad was diagnosed in June, 2013. His symptoms seem to be progressing so quickly. I am trying so hard to coordinate from another state his care and benefits. We have applied for VA benefits, but they are sending him to a PCP 1 1/2 hrs away! It all seems so crazy. I have been reading these...
Hi,
This another one of those posts; first of all bear with me (and I thank you dearly for it) as I've read quite a lot of topics in this forum and I'd like an answer for my doubts; I am mainly asking since goggling gives either unreliable sources or mixed results. But first of all I'd like...
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do i have als?
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My mom was just diagnosed last week, and we're considering these 3 clinics for confirmation/treatment plan and would like to know the collective thoughts, experiences, and opinions on the options.
In addition to thoughts about quality of care, we would be interested to know info about...
My mom was diagnosed a couple days before Thanksgiving. We of course knew something wrong was going on, but needless to say we were all blown away. Her neuro suggested considering a trip to a multidisciplinary clinic, and he casually mentioned Mayo, but we're totally lost. And, of course, in...
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Hi all! Sorry this is so long. We are back from Wash U/BJ and confused as ever. We did have to spend the night to get all of the tests completed. The hotel was great and it was connected to the clinics by a skywalk. He falls under the MDA umbrella and is agreeable to participate in their...
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We are moving 10 hours away to be near near family in southern GA. Once we are settled we will need to transfer to a new ALS clinic. Can anyone give us advice; do we travel 5 hours (and through Atlanta traffic) to attend the Emory ALS clinic, or do we travel 2 hours to Jacksonville, FL to...
Very confusing time for us and I'm just trying to learn as much as possible. Anyhow, my mom was diagnosed last week. She has been having a hard time walking since 2008. She's been to multiple hospitals, including mayo, and they ran many test. Dr. at mayo said she's a complex case, with no...