clinics

I would like to know if anyone has been treated at U of M in Ann Arbor, Mich. I have had a hard time deciding where to take my wife who has been diagnosed with ALS in December, I was looking at Cleveland Clinic also. U of M is Hour and a half away and Cleveland Cleveland Clinic is 2 1/2 hours...

Has anyone had an appointment with any of the Mayo Clinics and have Medicare as your primary insurance? I understand they do not accept the Medicare fee schedule and I will be responsible for the remaining bill. That could be a big bill. Any advice? Thank you

Hi, I was diagnosed by my Neurologist at the end of October and since have been to two ALS clinics that have confirmed the diagnosis. I am 48, divorced and share custody of my two children. Things are a little overwhelming but I have told all of my family but the kids. I am waiting until the...

Eddie Redmayne, the British actor who recently played Stephen Hawking in the new movie "The Theory of Everything" just appeared on Jon Stewart's political comedy show, "The Daily Show." He said he visited MND clinics, could distinguish UMN and LMN, and described fasciculations. Not a bad...

Could anyone tell me what happens when you visit an ALS clinic/if they've ever been to the one in Chapel Hill, NC.? Thanks!

My husband was recently diagnosed with ALS by Baylor Neurology and is set up to begin their clinic. I've read a little on line about the Methodist MDA-ALS Clinic which sounds like it's been in existence longer but it's very hard to tell what the similarities/differences are between these two...

Having complained about national ALS clinic lists' selectivity to no avail, and with a strong belief that patients shouldn't have to drive hours to jump through hoops absent concrete reasons like trials, I've made my own map-- still holes to fill, but more listings than others I've seen so I'm...

I want to get some feedback on a problem I have. Was diagnosed June 17, 2014. At that time I was scheduled for an appointment for follow up visit on July 17th. I was then scheduled for a follow up appointment October 7th. I believe my disease is progressing rather fast. I have a concerns...

Took my PAL (S-?) to the Prescott, AZ VA Hospital SCI clinic this week after waiting 6 weeks for appt. as they are designated as his primary. Scheduled for 2 hours but only got over one as "they" had scheduled another patient in his time. No doc, just a condescending Nurse Practitioner "who had...

I posted a while back about my mother who had trouble swallowing and partial loss of speech / dysphagia back in december 2013 and we have now been through two EMGs, as her symptoms are more or less the same (although worsening a little bit). The results look really bad yet the doctors do not...