clinical

  1. KimT

    Is anyone in or following the CuATSM Study?

    https://newatlas.com/als-mnd-drug-clinical-trial-success/58026/?fbclid=IwAR1dOxTr-tJmf4NQrwUU1_KfxNulx8mxNHBqjXL_YU8hHcm1suw9r6aAnBE I have a hard time reconciling this with the fact that my free copper was high at diagnosis and I got it down to normal levels. My serum copper level was always...
  2. W

    Twitching cramps and stiffness

    Hello everyone 3 weeks ago I started feeling twitching in my left shoulder. It wasn't strong at first but now I can most definitely feel it. Doesn't happen all the time. Comes and goes through out the day. Sometimes it will stop for like 8 hours. During this time I have been feeling stiffness...
  3. C

    Hesitant To Post But Very Concerned

    I promised myself I wouldn't post here, but I caved to my stress over these symptoms. 42 year old Male. Initially I noticed a fine tremor in my left hand and feeling of internal tremor and starting having concerns over Parkinson's. In early November I started developing twitches in my legs...
  4. Doglady

    HERV-K suppression study

    Wondering what others may think of the idea of Human Retro Viruses being thought to be a cause of ALS and use of HIV drugs to treat PALS? Info on the study: https://www.ninds.nih.gov/Disorders/Clinical-Trials/HERV-K-Suppression-Using-Antiretroviral-Therapy-Volunteers-Amyotrophic The clinical...
  5. Doglady

    Microsoft supported Research - Answer ALS

    Thought this was an interesting article about a research project called "Answer ALS" where PALS can help to collect clinical, genetic, behavioral, molecular and biochemical data on people living with ALS. Using artificial intelligence and machine learning, researchers plan to analyze the data to...
  6. R

    Thank you in advance

    I want to thank you all in advance, and let you know that I will not dispute your suggestion (and only welcome it) if you don't think ALS is a possibility in my case. I also want to let you know that my thoughts are with each of you that have been diagnosed or have had a family member diagnosed...
  7. lgelb

    Mayo recruiting for pilot study

    Details are here.
  8. H

    ALS fear with thenar atrophy, twitching, cramp tendency

    Hi there Great respect to your forum and the great people that are fighting the disease, friends and care givers! ALS is a shocking tragedy for humanity in 2019, 150 years after its discovery still no cure. About myself I'm Asian, live in Calgary, Canada. I'm 33, a father of 2 lovely kids at...
  9. R

    need opinions and guidance

    Hello to all, I am new to this group and would love some information and perspective on people who have seen this terrible disease first hand. I am posting for my mother who is 58 years old and experiencing an array of symptoms and problems for about 5+ months now. This all started back in...
  10. S

    Still have concerns

    Hi, I apologize for being back but the drs. can’t get to the root of my issues and keep telling me to go back to the neurologist. The Neuros keep saying come back in 6 months. My last visit drs thought I had celiac but now it turns out that was not the issue. Couple of questions if you don’t...
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