clinic

After reading a few threads about the Vancouver ALS Clinic I spoke to the main contact there about "Giving Hope without False Hope." I sent a follow up email listing some things like the supplement list Sunnybrook gives out (thank you Al!) so people can feel they are doing something. I am...

Hi All, I was wondering if you could give me your opinion on my husband. For about a year he was having issues with his back. He tried physical therapy and epidurals. Nothing seemed to help. Fast forward to a couple of months ago...we both started noticing him limping. He noticed that his...

DH had his long awaited (3 months) wheelchair mods done yesterday. He got elbow blocks and arm supports, lateral supports, and a new headrest. He is not happy with most of them. Says they restrict his movement too much. He says he wants me to take them all off and go back to what he had, but...

The clinic called and asked me if would be willing to take part in the Orion (levosimendan) phase III trial. Just wondering if anyone here had any experience with it...

I just received a lovely Permobil F3 from my ALS loaner closet. I can still walk using a rollator or cane but have slowed way down. The tipping point (pun intended) recently occurred while out on a walk with my dog and my walker. I was bending over to pick up poop (the neighbors love it when...

I realize the answer is wait and see the dx, just wondering if I’m on a common path to a diagnosis that others have experienced? I have extreme left arm weakness (can’t lift), and increasing weakness in other limbs + fasciculations + fatigue. EMG by neuro found “active and chronic denervation”...

My husband, the love of my life was diagnosed with the slow moving ALS 2 months ago. I have been freaking out and crying and a complete mess. I think I am sort of in control now. He has remained in control the whole time and says that he can’t afford to break down since he does not know how...

So heres my current situation. A year and a half ago I started twitching widespread. Like a lot of people on here i turned to dr. Google and flipped. I saw a bunch of neurologists and the head als specialist at cleveland clinic eric pioro and kept pushing for an emg. Eventually i had a clean emg...

I have been waiting for our official diagnosis from and ALS specialist/neurologist to post and we got it last Thursday so here I am. My mom was her normal awesome self in April this year. In May we noticed she was slurring her words and she had a couple of falls while cleaning the house. In...

"Interesting case", "atypical presentation", no official diagnosis. Good afternoon, and greetings. 32 year old fit female labeled as diagnostic mystery. 10 months ago--twitching all over body. Intense for 2 months, then left side predominated. Severe occipital headache, neck pain, pain in...