clinic

Hello all! I'm posting about my Mother-in-law who has received a potential diagnosis of ALS, but is being sent to a specialist here in Atlanta to confirm. It started in June with back pain/trouble walking and a very slight slurred speech. I'm not sure everyone would have noticed her speech at...

My Dad recently has been having an increase in twitching in his stomach as well as feeling like he can’t breath out fully. It’s only been happening the last two days and last week he was at the ALS clinic for his 3 month check up and they said he had no progression. Although they didn’t do a...

One option given at my first ALS Clinic visit yesterday was Radicava infusion treatments. Comment and/or experience with the process please. If I do these treatments I will not be eligible for a couple of trials they are doing at the ALS Clinic.

During my first clinic visit yesterday it was found that my breathing while sleeping needs assistance and they want me to use a Trilogy while sleeping. Is there anything I need to know about this process.

Not without a fuss, mind you. Mayo found an antibody (glycine receptor antibody) and wanted to try several treatments for limb variant stiff person syndrome. Alas, nope. I felt the fourth trial improved my balance (quite a lot actually) but they can see no improvement, plus, everything has...

After nearly 4 months of tests and 2 EMGs I have been diagnosed with ALS. Looking back a few years I can see small changes in health that progressed to this diagnoses. Next month I will be 77. I am going to my first visit at an ALS Clinic (Indianapolis) on Tuesday and am preparing a list of...

Lately I'm having a lot of involuntary jaw clenching. Does anyone know if this is just stress or if it is another random UMN thing? I have a LOT of cramps, over-active reflexes, spasticity etc. Is this another thing like that, or just stress induced? The reason I ask is because I think I...

Hello to all, As I’m sure everyone here can understand, I never thought I would need to post on this forum. My only knowledge of ALS was through the ice bucket challenge! My 70 year old mother was diagnosed with ALS at the beginning of August this year. I first noticed something wasn’t quite...

I hate to bother each of you, but wondered if you had any insight. For the past couple of months I have had a Globus sensation, excessive bleaching, feeling like my belches are getting stuck, gurgling sound in throat, some regurgitation and the feeling of pills being stuck in my chest. I also...

My PALS was diagnosed in May 2017. He has ALS/FTD, feeding tube placed in May with continuous feed, Bipap starting in May at night, is all upper body and can still walk but will assistance. When he received the bipap he immediately adapted to it and slept twelve hours the first night. In fact...