clinic

I have been having a very hard time with saliva. It has really gotten worse in the past 3 months. My neurologist at the ALS Clinic has given me two medications. One is a capsul and the other is drops under my tongue. They help, but very minimally. Her suggestion is to get Botox injections...

I was finally diagnosed in September after making an appointment at another neurology center. My first neurologist said I was too old (77) for ALS and gave a DX of sensorimotor polyneuropathy. It turns out that I have both and was told by the ALS clinic that it is not unusual for older patients...

First off, I want to thank you all so much for the invaluable wisdom so many of you have shared here. You have helped so many (including me) through this disorienting process, and I really can’t thank you enough. This is my first time posting, and I feel like I have nowhere else to turn. My...

My PALS has had her first 2 MDC's @ Mayo Clinic (FL) and Medicare has approved all associated claims except for her neurologist's charges. Naturally, these are the most expensive charges ($305). The procedure codes submitted by the Mayo are 99215 and 99354, with a diagnosis code of Z82.0. In...

Hi, I'm Nikki. My husband was diagnosed with ALS last December. I have spent the last year lurking on this site and finally feel like I am getting to the point where I may want to start asking questions. My husband Colin is 51. I am 36 and I have a 9 and 11 year old whom he is stepdad to. He has...

Hi all, I’m writing a book on living with ALS. I’m curious if countries besides the US and Canada have a similar clinic set-up to what we have. We have “ALS clinics” which are held approximately every 3 months and are staffed by the attending neurologist and a team of therapists who all see...

Hello, First off, I had been lurking here for about a year now and read the sticky note and that is why I haven’t posted anything yet. My thoughts and prayers are with you all who have this disease! My situation is a little different and would love for you some advice. Even if you told me to...

At clinic earlier this week, DH explained the troubles he was having controlling his PWC. He has lost just about all control of his hands, save his right thumb. The wheelchair rep suggested trying a different joystick, but when the OT came in (wish they could have been there together) he...

Hello. I Live in Orlando Fl. I am 52 years young seeking a Neuromuscular specialist in my area. I have been getting passed around from physician to physician for 7 months now. My Primary care Physician team feels as helpless as I do and they have worked hard to get me answers. 7 months ago...

I've been lurking here for about 6 months, mostly to be able to say, "oh good, that doesn't sound like me!" But, as of September 24th, I became an "official PALS". Not a club I wanted to be part of. My symptoms started with excessive yawning, and the inability to sing. Like I sang a solo on...