choking

  1. O

    I still don't really believe this diagnosis...

    (Still trying to learn how to move around this site, so I hope my comments are in the correct forum.) I want to say Hello and how much I appreciate the depth of knowledge and the forthrightness that I read posted here. My diagnosis was last October, 2017, after spending about 18 months chasing...
  2. pdcraig

    Need some advice and a bit of a ramble

    It's been a long time since I last posted. My PALS is still hanging in, defying all predictions. It's sometimes hard to believe it's been over 5 years. He's reached the point where swallowing is a real issue. No PEG, he won't consent. He's saying he is choking on his saliva all the time. When I...
  3. A

    Nuedexta denial from Medicare

    I have been taking nuedexta for the last month (samples from my doctor) while we tried to get the prescription filled. Medicare has denied and says we can appeal. Walgreens says our cost would be $1200 a month ! I think it has really helped with swallowing since I’ve gone from 3 nighttime...
  4. T

    Could it Really Be?

    First off, my story... I’m a white, 29 year old male, and in the middle of December I started developing headaches. The headache was so intense I had to go to the ER at UAB in Birmingham, AL. They found a “small” vascular benign lesion in my left frontal lobe. The neuros sent me home and just...
  5. N

    would the peg help with saliva/mucus problems?

    Hi All, My bulbar onset dad who refuses a peg has more and more problems with not being able to cough out whatever bothers him in his throat, or deeper than throat, and also with saliva or mucus - I am not sure he knows which one is the bigger problem; he seems to think it's saliva, and its...
  6. A

    Màking hospice decision

    We met with a hospice provider yesterday and I am struggling with the decision to sign on. Really the only reason I am considering it is to get the morphine in the house to help with a peaceful pasśing, not that I'm ready for that quiet yet. I do not want to give up my neurologist and RT either...
  7. A

    coughing constantly

    started yesterday afternoon And causes hours long choking episodes no fever but my family has had bad colds feels like annoying nasal drip but can't cough it up even with cough assist and suction bipap air blowing down my throat is causing more violent episodes don't think it's sickness...
  8. S

    Feeding tube declined

    My Dad is now at the stage that he is having trouble swallowing. He can still walk and talk (minimally) but his main issues are with breathing and now swallowing. He has declined the feeding tube twice, last time was in August when he went to the appointment for the tube surgery and an hour in...
  9. K

    Extreme dysphagia, diagnosed with "unspecified autoimmune", would like some input

    Extreme dysphagia, diagnosed with "unspecified autoimmune", would like some input I have done the math, and I'm a statistician - getting diagnosed with ALS is extremely rare. For someone like me, younger than 30 (I am 29), it's even more rare. On top of that, "bulbar onset ALS" is an additional...
  10. L

    Does my mom have ALS?

    Hi ! I am new here and I wanted to know if my mom has ALS... Here is the history: My mom frequently woke up choking...some time passed and it never happens again. well, 1 year, I think, later, she starts to stumble in the streets with her left foot. later she started to limp too...she had...
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