children

I was first diagnosed with ALS. But recently i was diagnosed with PLS. And im happier with that diagnosis if i have to have one but im 35. My upper body seems to failing no one understands and no one wants to talk about it I'm want to go to work I want to be able to volunteer in my children's...

Hi there, There is a documentary film coming out soon called ITS NOT YET DARK which many here may be interested in. It will be available On Demand in the US on August 4th (iTunes, Amazon Instant, Vudu, Google Play). Here's the trailer and the synopsis...

My PALS was diagnosed in Sept 2011. I am not aware of anyone else in his family that has or had ALS. His mother passed a year and a half ago and a family member came across an old letter that she had filed away about a family member who had died showing some symptoms of ALS probably 75 years...

Ok...so there is soo much to discuss but I don't know where to begin...... So I will do what any teacher does and create a list.... 1. My dad is going down hill faster than anyone thought... 2. I am tired...exhausted is more the word... 3. Yes, I am on meds to help 4. My sister is going to...

I am so frustrated: booking for an upcoming trip to visit my hometown, we have been unable to find any hotel with an accessible room that is more than one bed. I called every hotel in the area we want to stay and they are all just 1 queen sized bed, but we have two small children. What do...

Hope Loves Company, a non-profit with the mission of providing educational and emotional support to children and young adults who had or have a loved one battling ALS, and its sponsors, has two upcoming camps for ALS families in Florida and California! Please go to Hope Loves Company to learn...

Hi Everyone, It's been 13 month's since my husband's diagnosis. It's been a really long time since I've posted on here. I just wanted to update everyone on how everything is going, but first I would like to THANK ALL OF YOU :) You were my support system with your encouraging words of wisdom...

Hi, Folks. I bet you didn't know that Article 19 of the Convention on the Rights of Persons with Disabilities provides that a state is required ensure that disabled people have access to adequate support to allow them to remain at home. Specifically, the Convention requires a government to...

In january (i believe) I posted on this forum after experiencing twitching in my legs for a few months. I had done a lot of "research", reading, and self-diagnosing. My grandmother died of ALS in the 80's. And so familial was within my radar. However, it would take a month for me to even see a...

Hi everyone, This is my first time posting and am looking for any advice relating to pregnancy with a ALS diagnosis. I started getting my symptoms 2 years ago when I was 24. It started in my left hand and eventually the constant twitching started in my arm. I have had numerous MRI's, blood...