children

  1. F

    C9orf72

    I have not posted in a while, but mom passed on Feb 22 from respiratory failure, she lived 16 months with the disease and what was heartbreaking is that despite us knowing this would happen we did not know it was going to be so soon, from laughing with her on Saturday to seeing her fall sleep on...
    • Faith27
    • Thread
    • back children diagnosed early family fear foot onset questions respiratory respiratory failure sleep stress twitching weakness young
    • Replies: 5
    • Forum: Familial ALS (FALS)
  2. N

    Bit of a meltdown....kind of embarrassed

    I went to my first ALS Assoc CALS meeting and everyone went around the room describing their PALS current situation and when it started, how it started, details, etc., in quite length....and I was unfortunately last on this circle of sharing (first time, hate sharing anything usually in public...
  3. M

    Vast symptoms... worried about Bulbar onset.

    I was recently told by my internist that I most likely have Myasthenia Gravis, ALS, or something similar. She is not thrilled with my care thus far by my current neurologist and spoke with the chief of Neurology at the University of Utah, who specializes in ALS, MG, EMG, etc. He has agreed to...
    • MissyK
    • Thread
    • als back brain bulbar bulbar onset children clonus cry diagnosis early emg insurance neurologist neurology night onset pain shoulder speech swallow swallowing symptoms twitches twitching weakness worry
    • Replies: 33
    • Forum: Could this be ALS?
  4. J

    New Diagnosis

    New friends, My name is Jessi and my mother in law, Eileen, was just diagnosed with ALS about 3 weeks ago. She is a 2 time breast cancer survivor so they are unsure of whether or not her ALS is related to the radiation she underwent as a part of her cancer treatment or not. She lost total use...
    • jessiseppathompson
    • Thread
    • als arm caregiver children decline diagnosed diagnosis eating falling life meds new diagnosis progression questions shoulder treatment trip unsure walker wrong
    • Replies: 2
    • Forum: Newly diagnosed
  5. M

    Stem cell transplants

    My Dad who is 60 an active and daily exercise this entire life was just diagnosed with ALS last week. We are totally devasted and feel completely overwhelmed at the task of trying to slow or better yet stop the progression of this disease. He has 4 children, a wife, 3 young grandchildren that...
    • Meghan98ray
    • Thread
    • als cell children cure dad diagnosed exercise friend life progression stem cell travel work young
    • Replies: 5
    • Forum: Newly diagnosed
  6. A

    Cannot wrap my head around this..

    Hello, first and foremost I'm not looking for a diagnosis. Maybe just some positivity! I am a 30 year old female who was living a very healthy, active, meaningful life. The kind of life where I have 2 beautiful children, a wonderful husband, am a former mail carrier (haven't been able to work...
    • AliB
    • Thread
    • ability back breathing breathing issues children choking clinical diagnosis emg family fatigue female lou gehrig's disease motor neuron disease muscle muscle twitching neurologist neurology slurred speech speech speech therapy story tests twitching vitamin d weakness
    • Replies: 3
    • Forum: Could this be ALS?
  7. N

    Hello and thank you

    I am grateful for this forum and appreciate all the helpful info and camaraderie....hello and thank you!
  8. S

    Now I've become Her Burden

    It's been close to 2 years since My Liz was taken from us after a 5 year ALS battle. And yes I have started a new life with a wonderful new Wife. The last 3 months have been horrible. I can't shake the feeling I'm cheating on Liz and shouldn't be happy. Thankfully my 2 children are not only...
  9. K

    New Member from U.S.

    Hi, I'm a new member from Tennessee. My 34 year old son was diagnosed with ALS almost two years ago. He has a beautiful wife and two young children. I help provide care for my son and his family as often as they need me. It's difficult as a mom to watch my son progress but I'm trying to be...
    • Kato6401
    • Thread
    • als children diagnosed family love new member young
    • Replies: 1
    • Forum: New members
  10. M

    Turning to you for an opinion

    You are all amazing people offering incredible support. I stumbled across this forum accidently but would appreciate an opinion on my symptoms. I'm 40 years old with 5 mega young children, all under 6. In Sept 2016, I noticed my thumb was tiring whilst typing and using my mobile. From then, I...
    • Mumof5
    • Thread
    • arm catheter children cold fear finger fingers muscle muscle twitching problems shoulder stress support symptoms thumb twitches twitching wrong young
    • Replies: 16
    • Forum: Could this be ALS?
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