children

  1. T

    Lateral rotation mattress

    Hi all, We are going to be getting a hospital bed soon. I am thinking about a lateral rotation air mattress. My husband doesn't have much use of his arms. I realize that Medicare or insurance probably won't pay. I have a medical condition that requires me to sleep through the night. We...
  2. W

    Genetics.

    Hi, My husband has the C9orf72 gene mutation and so my children are at risk. They don't want to know. My question is this, Do I tell the family? There are sibliings, cousins, niece's and nephews also at risk and totally unaware of this. They know my husband has bvftd but not that it is...
  3. M

    Systematic twitches

    25 y/o female of 2 young children here. I've been under a lot of stress this year. Starting in January I started getting horrible tension headaches, body wide pain in almost every joint, bone and nerve. The doctor said it was TMJ. Went to the oral surgeon he ruled out TMJ. Went back to the...
  4. C

    So Scared

    I'm a 35 year old woman. I have two small children. Since beginning of June , I started to have muscle pain in my quads, calves, biceps, triceps. Muscle twitching all over my body and muscle weakness everywhere. I'm losing muscle strength. I can tell because every time I use a muscle...
  5. P

    Worried i have ALS, I'm 31 and worried about leaving my kifs without a mum 😢

    Hi there everyone, Thank you in advance for reading this! First of all my aunty (my mum's sister) passed away from als at the age of 51, so its worries me its in our family genes. The last 10 days, I've having a lot of muscle tightness in my legs, mainly the left one, shooting nerve pain in the...
  6. M

    Afraid of dying / existential stuff

    Hi. Lately (few months) I have been feeling depressed and anxious. I am afraid of dying. Not the dying itself, but the existential questions around it. Was my life useful? Have I been inspirational, funny, social, intelligent...good enough? Will the not forget me? I keep getting stressed...
  7. Kristina1

    need support, laryngospasm

    I need to share this with people who know what im going through. I am very shaken up after worst laryngospasm to-date last night. I have been getting them over the past year, and this one was ten times worse than any ive had before. I went to breathe in and hit a rock solid wall. I tried to...
  8. K

    ALS - Marriage and divorce

    This will be my first time posting in this forum. I'm recently going through a divorce, and one of the main reason was that my in-laws didn't like that fact that my mom was an ALS patient. They were worried about the disease being passed down to my children (if I were to get pregnant), and they...
  9. S

    Facial weakness and continuing bulbar symptoms post EMG

    Hello, I'm a 43 year old male that started twitching in 1999. I saw a couple of Neuros back then and had an EMG that was clean. Diagnosis was simply benign fasiculations. Fast forward to late 2013, my voice started to have this weird vibration/rattle at the end of a sentence that occurred...
  10. Clearwater AL

    The pearly gates...

    Two doctors and an HMO manager die and line up together at the Pearly Gates. One doctor steps forward and tells St. Peter, “As a pediatric surgeon, I saved hundreds of children.” St. Peter lets him enter. The next doctor says, “As a psychiatrist, I helped thousands of people live better...
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