Hi all,
We are going to be getting a hospital bed soon. I am thinking about a lateral rotation air mattress. My husband doesn't have much use of his arms. I realize that Medicare or insurance probably won't pay.
I have a medical condition that requires me to sleep through the night. We...
Hi,
My husband has the C9orf72 gene mutation and so my children are at risk. They don't want to know. My question is this,
Do I tell the family?
There are sibliings, cousins, niece's and nephews also at risk and totally unaware of this.
They know my husband has bvftd but not that it is...
25 y/o female of 2 young children here. I've been under a lot of stress this year.
Starting in January I started getting horrible tension headaches, body wide pain in almost every joint, bone and nerve. The doctor said it was TMJ.
Went to the oral surgeon he ruled out TMJ.
Went back to the...
arm
atrophy
back
children
cramping
diagnosis
early
emg
family
female
fibromyalgia
go away
ice
mistake
mri
muscle
neurologist
pain
shoulder
story
stress
symptoms
tests
twitches
vitamin d
I'm a 35 year old woman. I have two small children. Since beginning of June , I started to have muscle pain in my quads, calves, biceps, triceps.
Muscle twitching all over my body and muscle weakness everywhere. I'm losing muscle strength. I can tell because every time I use a muscle...
Hi there everyone,
Thank you in advance for reading this!
First of all my aunty (my mum's sister) passed away from als at the age of 51, so its worries me its in our family genes.
The last 10 days, I've having a lot of muscle tightness in my legs, mainly the left one, shooting nerve pain in the...
Hi. Lately (few months) I have been feeling depressed and anxious.
I am afraid of dying. Not the dying itself, but the existential questions around it.
Was my life useful? Have I been inspirational, funny, social, intelligent...good enough? Will the not forget me?
I keep getting stressed...
I need to share this with people who know what im going through.
I am very shaken up after worst laryngospasm to-date last night. I have been getting them over the past year, and this one was ten times worse than any ive had before. I went to breathe in and hit a rock solid wall. I tried to...
This will be my first time posting in this forum. I'm recently going through a divorce, and one of the main reason was that my in-laws didn't like that fact that my mom was an ALS patient. They were worried about the disease being passed down to my children (if I were to get pregnant), and they...
Hello,
I'm a 43 year old male that started twitching in 1999. I saw a couple of Neuros back then and had an EMG that was clean. Diagnosis was simply benign fasiculations.
Fast forward to late 2013, my voice started to have this weird vibration/rattle at the end of a sentence that occurred...
back
bed
bfs
bulbar
bulbar symptoms
children
dementia
diagnosis
early
emg
family
fatigue
increase
mri
muscle
shaking
shortness of breath
speech
sporadic
swallow
symptoms
test
twitching
wanted
weakness
wrong
Two doctors and an HMO manager die and line up together at the Pearly Gates.
One doctor steps forward and tells St. Peter, “As a pediatric surgeon, I saved hundreds of children.” St. Peter lets him enter.
The next doctor says, “As a psychiatrist, I helped thousands of people live better...