cell

  1. F

    My wife died of ALS last Monday, Nov 27,2017

    This is the last time that I will post to this site. I was a care giver for my wife for 2 years....I was in denial about her ALS and never believed it. She had horrible pain before she passed...so anyone who thinks that ALS isn't painful is wrong. Some people with this horrible disease do have...
  2. B

    My husband cried today

    For the first time since his diagnosis in June, my husband broke down. He has rapidly lost his ability to speak, and he was trying to tell me something that I just couldn't grasp. He tried to write it down but could only write one word that made no sense to me at all. He can't put his...
  3. A

    Corestem's Neuronata-R

    I was just reading this market report & it makes mention of 3 drugs available on the market for ALS - Radicava, Riluzole & another called Neuronata-R. I've never heard of that one before & it looks to be a Chinese Stem Cell therapy? I wonder why it made it into this report... Amyotrophic...
  4. M

    Concerns about symptoms

    My issues started in 2014. I started having numbness and tingling on one side of my body and when I would move I would walk my right leg would have a slow response. I saw a neurologist and my clinical exam looked fine and he ordered no testing. These feelings seemed to come and go over the next...
  5. D

    Anterior Horn Cell Disease

    Hey Everyone, Recently a family member of mine has been diagnosed with Anterior Horn Cell Disease caused by MND. They have been given a prognosis of two years. But I am having trouble trying to find out information about it, and contrary to what I have found on this forum it seems to be...
  6. gigem

    Radicava or NurOwn stem cell trial?

    Assuming you had access to both, and cost was not an issue, which would you choose? Radicava or a 50/50 coin flip as a participant in the NurOwn stem cell trial (placebo or actual treatment)? You can't do both. My wife started Radicava last week, but is still haunted by the PR from BrainStorm...
  7. T

    anterior horn cell disease

    I have recently been diagnosed with anterior horn cell disease. Has anyone else been diagnosed with this? Information about this has difficult to find, can anyone recommend any sites?
  8. Erika

    More changes as the end gets closer :(

    My mom has been sleeping most of the day since september 15 after a crisis with secretions and saliva where we used the coughing assist. She was able to stay awake for about the time when my brother came to visit about 10 days ago. :) But every day after that, its harder and harder for her to...
  9. K

    Mri ?

    I have done for my self "Mri"doctor told me it's apparent theirs atrophy in your brain cell, is it possible that atrophy of brain cell apparent in MRI?
  10. S

    Cns10-nps

    Hi all, Has anyone participated in Cedars-Sinai's CNS10-NPC stem cell study? My husband is strongly considering participating in this study and his Neurologist has been pushing him to do it, but we are obviously concerned about possible outcomes. It sounds like most participants have made it...
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