canada

  1. Vincent

    Peg/rig

    I just got back from Toronto where I spent 3 nights in an exclusive hotel recovering from my latest piercing. Yes, I now have a RIG. Which they insisted on calling a PEG. I'm just using it for meds now, but I thought I'd better get it in while it's still an option. Not a pleasant experience but...
  2. Scotiaspirit

    Medical Cannabis in Canada

    To my fellow Canadian PALS. If you are taking or considering to take Medical Cannabis (Medical Marijuana) for your ALS or secondary symptoms as prescribed by your doctor, you may find that at least in some provinces that HST (Harmonized Sales Tax) or GST (Goods and Services Tax) are being...
  3. Green Queen

    Strayan vs canada...ism...lingo

    So Australian lingo gets called strayan or strine. No idea sorry what Canada language would be. Not French Canadian, English Canadian. Haha! Yes, OK, it gets called English!! Something always gets lost in translation, right Mike? Some of you know, we are travelling to parts of Canada later...
  4. T

    First Time Being Worried About ALS

    Hello, I'm a 22 year old male from Canada with no family history of ALS. I have a second or third cousin with MS, but other than that, no family history of any MND of any kind. In addition, I'm 99% sure I have nothing to worry about and I've got a doctor's appointment in 4 days just to be safe...
  5. G

    BioVerity, a vitamin supplement

    This is being discussed in the fb group Research on Motor Neuron Disease. A couple of PhD's at McMaster University in Canada have been working on a vitamin supplement for over 15 years. The mix of 30 over the counter vitamins and supplements, which seems to prevent and reverse damage to cells...
  6. ShiftKicker

    Alternate for Neudexta?

    This was brought up in the thread re: B12 shots, and I didn't want to hijack the thread further. In that thread, we discovered 3 Canadians (myself, Trixi80 and Gorby) all seem to be seeing the same neuro- who is quite conservative in offering treatments and options. Neudexta was brought up...
  7. B

    Going to see a doctor soon, but I was hoping someone could answer a few questions.

    Hey everyone! I think I may have ALS, but I'm not really sure. Here's a bit of my medical history: SWIM was into psychedelics for a while, doing things like LSD, MDMA, Mushrooms, and Weed. I still smoke weed in wax form daily, although I plan on stopping tonight. About ten months ago I saw a...
  8. ShiftKicker

    I just wanted a chair...that's all.

    This isn't directly to do with MND, but I'm sure others have run into this type of thing before when dealing with insurance companies. A while back, I was told I needed a lift recliner to help me in all sorts of ways- mostly for help with edema and comfort while sitting. I looked at our...
  9. Vincent

    A new adventure.

    Late last spring I was told of an opportunity to help out ALS Canada by doing public speaking as an Ambassador. The Ambassador Program was started to provide speakers to deliver targeted talks to various groups. The idea being to have people who can speak from different perspectives on ALS from...
  10. S

    Respiratory Onset ALS

    After finding the love of my life 5 years ago and just planning our retirement traveling with our toy hauler all thru out Canada and US my partner was diagnosed wish ALS on December 18,2015. Not only are we in full shock but we found out today that he has the worse type "Respiratory Onset ALS"...
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