cals

are sign of closer immobility, worse disbalance, muscle deterior or...? i have brisker reflexes than last time i visited my neuro (3 months ago), my neuro noted. forgot to ask him. asked him about upper motor neuron, he said can not measure, just clinically. he talked about ENCALS in GB he...

So, here I am starting my own CALS thread. It's about time I stop hijacking the threads of others. I have little to say right now - its very late and I am very tired. But I realize it is high time I start to ask my questions and post my thoughts on my own thread. My PALS (husband, Dave) is...

(I questioned whether to post this or not. Some may take it wrong but it may bring some conversation to this sub-forum. And… I’m not sure what sub-forum it belongs. Mods… move it if need be.) This is about decisions many of us face. First, I no seek of sympathy, Ann and I have been very...

I really, really wanted to be an active member on this forum. Around September of last year, my wife has wanted me by her side all the time. The depression, stress and physical fatigue brings me down. The lack of sleep just destroys me. I just couldn't find the time... I've seen posts saying...

Hi, I'm new here, so I thought I should introduce myself. After going from doctor to doctor for over a year, my Dad was diagnosed with ALS at the end of Dec. 2107. (I would say his symptoms started in about July 2016.) From what I'm reading it seems to be limb onset, with the greatest affect...

First of all i want to apologise to Nikki i think my questions kinda angered her? At the newly diagnosed thread. I have searched so many sitrs but every site is so general apart from here. I want to ask the caregivers here were you afraid you are going to be sick too? Or you got sick? I have...

Hello Everyone, How did or do you find time to take care of YOU?? My husband and I are new into our journey with ALS. I have been told over and over to take care of myself so I can take care of my husband. HOW do you find time??? I need to work full time. I don't want to eat up my "sick"...

"Showing the reality of ALS" in a PSA campaign is a nice idea, but how real is it to portray PALS who have survived 10, 14 and 15 years so far (only ~20% live >5y), respectively, two of whom have trachs, rarely used in the US? Following each vignette with the hyperbolic tagline about having...

I've followed and appreciated tips and words of comfort for a while now but only signed up in Feb. My wife/best friend was DX in June of 15 at the age of 44 with Bulbar on set, symptoms actually started in Oct of 14. At DX was when we found out that she is the 7th one in the family tree with it...

Written for professionals, really for the CALS this is critical stuff to understand when they are dealing with cognitive impairment or even full blown FTD. I hope CALS find this helpful. I also hope that more tools are developed that can be used with the CALS to help figure out impairment...