cals

  1. pdcraig

    What now? part 2

    It's late, can't sleep. Just rambing, trying to put some thoughts in order. I can't believe it's been 4 months since Ferd died. It feels like I haven't seen him in forever, like it's been so much longer. And then I think it's only been 4 months, that's why this still feels so raw. I'm back at...
  2. A

    Breathing, Swallowing issues

    Firstly I want to thank you all in advance for taking the time and effort to read this post I know time and effort are so incredibly valuable to PALS/CALS. I have taken the time to read the sticky’s and understand that I fall into the lowest possible risk group. To make this short I have...
  3. MarieLaure

    the Burger Quizz

    hello there ! (long read) Here we have a silly nonsense game on tv. It goes like this : there are two teams made of two famous persons and a candidate. They must score points by answering questions that sometimes don't make any sense and are sometimes serious. It is more a pun and bad faith...
  4. Chincoteaguer

    Emergency call or alert options

    My wife (PALS) and I are concerned that I as primary CALS although in good health may have a Medical or other emergency where I I cannot contact anyone. My wife does use her iPhone but is unable to speak clearly. I suspect there are iPhone Apps or necklace gadgets that can be set up to do this...
  5. chally

    Support group

    Had a great group of vets meet at Clarksburg VA med center in Clarksburg we. 9 vets with als. We meet every 3 month There is laughter, tears,anger,gratitude we come together with our cals and share what’s going on with us. A good group thanks to the staff Love ya all Chally
  6. KimT

    Making Things Easier - Part 4

    Nikki started three threads on this topic. We posted things that made things easier for PALS/CALS. The third thread looks like it closed. I switched all my towels to Dri-Soft Plus (from Bed, Bath & Beyond.) They are inexpensive, very light weight, dry super fast, and don't mildew when hung...
  7. chally

    Cals in the garden

    Today is beautiful day
  8. A

    question from my cals husband

    I'm writing this for my husband who refuses to join forum. I will forward your responses to him! I'd like to help my wife be able to stay asleep at night longer than two or three hours at one time. Her chin strap needs adjusting then As well as a pillow or two. She says this is normal for a...
  9. affected

    incontinence solutions

    This comes up quite often. I have just had a couple of CALS report serious success with this product. Of course I'm not allowed to link so go to wellnessbriefs dot com The briefs (and side-tabbed diapers) use the same technology that NASA uses for the astronauts when they are in their space...
  10. N

    Robinul/Glycopyrrolate Thoughts

    Hi all, I am not a Dr. and I don’t play one on TV. I’m just a CALS who pays very close attention to what meds my PALS is on and how they affect him. I want to relate something I’ve learned so that you may be aware of a possible side effect of this medication. Brian has been on Robinul for...
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