burning

  1. S

    27 Year Old Male please read

    Hi y’all thank you for taking the time out to read this ... I have been living in fear for almost 3 years and I feel like I have to post here now .. My worries Started back 2.5 years ago when I had body wide twitching.. since then I started to notice how sometimes I slur a word or 2.. Since that...
  2. B

    Scared about als

    Hey guys! I’m sure you get this all the time as i can tell by the threads that are posted . But here’s my worry .... My dad died this past January from als at 68. I’m worried sick that i have the symptoms and here’s why . In February it’ll be 2 years with muscle twitches . I went and say a...
  3. S

    please help, too many symptoms matching.

    Dear all, Sorry for the mistakes, I'm French. Sorry for the lenght (also going to blame it on the french origin ^^) First of all, i want to express all my love to those suffering with ALS. I know how frustrating it can be for someone who has got diagnosed to see ‘healthy’ people not fully...
  4. H

    Noticable atrophy and weakness

    First off, let me say I have reservations about even posting this because half of me feels silly, but I can't get the concern out of my head. I'm a w/f 41. Back in March of this year I had some severe neck pain, went to the dr, got steroid shots and was on my way. May 1st, I wrecked my...
  5. V

    Worried/Scared

    The first thing I want to say is thank you for having a place like this, where people can go to voice their concerns. For that past 3 months, I've had disequilibrium. If you don't know me, you can't tell, but I feel off balance when I walk. It becomes especially pronounced if I stand with my...
  6. T

    I Mean No Disrespect But Have A Few ?'s

    For the past month I've had Fasculations that started in my lips which didin't scare me just concerned me. Then I started getting fasculations in both my calves which last 24/7 It's like someone is playing a piano on my calves. at this point I started to google and it said BFS or ALS. So For...
  7. 1

    In need of advice

    Hi. First of my heart goes out to all who are affected by such a terrible disease, friends and family members included. Now, I have been having an array of symptoms for sometime now. I am currently awaiting my appt for my Emg and I am a bit nervous. I would appreciate any advice about whether...
  8. P

    humidifier for Trilogy

    My husband, Frank, has a trach and uses the Trilogy with attached humidifier only at night. Saturday we lost power for 5 hours during the night. The Trilogy switched to battery but the humidifier was off due to loss of power. He claimed that he felt like his trachea felt like it was burning...
  9. D

    Tick all the boxes? Hoping for the best planning for the worst!!

    Hi my name is Daniel, I dont know if I have ALS but reading your posts / threads have helped me significantly on processing everything that has been happening to me in the last month and reading about your strength and sometimes humour during adversity only gives me strength whatever my future...
  10. R

    Spoke with a doctor

    I spoke on the phone with a familiar doctor, who didn't seem very concerned after I explained her everything. She didn't even really comment on it other than that she thinks that it's probably nothing and not a condition of any kind. However I've still been feeling super anxious. I read a few...
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