bulbar

  1. V

    No hope...definately bulbar ALS

    Hello, First of all thank you who will read my story. It is hard time for me now and i thought over of other possibilities, that could affect my health, but only bulbar ALS pops up in my mind. Everything started on march. I had a flu type virus for about two weeks and my left face side was...
    • virtuetovicee
    • Thread
    • als balance bulbar bulbar als clean emg cramping emg fatigue flu health hope improvement mri muscle neurologist onset pain problems stiffness story symptoms tests twitches twitching wrong
    • Replies: 9
    • Forum: Could this be ALS?
  2. G

    After months of lurking, I'm officially here

    I've been lurking here for about 6 months, mostly to be able to say, "oh good, that doesn't sound like me!" But, as of September 24th, I became an "official PALS". Not a club I wanted to be part of. My symptoms started with excessive yawning, and the inability to sing. Like I sang a solo on...
    • Grandma D
    • Thread
    • ability atrophy back baclofen bed bulbar clinic emg finger hope knee pain muscle muscle wasting pain riluzole slurred speech speech supplement swallowing symptoms tongue tongue atrophy wanted weakness
    • Replies: 11
    • Forum: Newly diagnosed
  3. R

    Spoke with a doctor

    I spoke on the phone with a familiar doctor, who didn't seem very concerned after I explained her everything. She didn't even really comment on it other than that she thinks that it's probably nothing and not a condition of any kind. However I've still been feeling super anxious. I read a few...
    • rasmus
    • Thread
    • als als? back bulbar bulbar onset burning cramping cramps dad family food meals mucus onset pain symptoms tongue twitching
    • Replies: 2
    • Forum: Could this be ALS?
  4. C

    Worried and confused

    Firstly, I want you guys to know I appreciate you taking the time to read my story. I am a 37 year old male, father of a two year old and I am very concerned about the probability of having a bulbar ALS diagnosis. Symptoms and dates: 1st week July 2018: buzzing in brain for 10 second...
    • Charles22
    • Thread
    • als arm atrophy back bulbar confused diagnosis emg father insurance lyme muscle neurologist onset pain shoulder speech statistics story swallowing test tests twitches twitching weakness
    • Replies: 5
    • Forum: Could this be ALS?
  5. A

    Nuedexta and radicava

    My mother found out that she’ll be able to start radicava soon and Medicare is going to cover the entire cost! She also had a feeding tube put in last week at Mass General and it went well. She can still eat relatively normally but gets tired after a while and has lost a little weight. She...
    • AliCat
    • Thread
    • bulbar bulbar onset cost feeding feeding tube improvement medicare nuedexta onset radicava saliva speech
    • Replies: 2
    • Forum: Current caregivers
  6. M

    Very Scared Bulbar Als??

    Hello everyone. I will try to explain what I have been going thru and any advice would be appreciated. I’m a 38 year old male. I started having dizziness in December 2017. I then had some left sided facial tingling around January 2018. For this my doctor ordered a Mri of brain and...
    • Malthoff8
    • Thread
    • advice age als als? arm arm weakness back brain bulbar cpap emg eyes hope increase insomnia mri neurologist questions scared sleep speech swallowing tests tongue twitches weakness
    • Replies: 17
    • Forum: Could this be ALS?
  7. S

    PEG tube question for women

    Hi, I was diagnosed with Bulbar Onset about 7 months ago. I am still able to eat some things, but they recommended that I get the PEG now, while I’m still fairly fit. My problem is that they situated under my breast, which is large. When I sit, my breast covers it, and it gets irritated. I...
  8. T

    Diagnosis At Last

    Hello everyone. My husband of 30 years was diagnosed 3rd October 2018 of Bulbar Onset/ALS. It was a relief for us all to have a diagnosis as we was wondering all sorts what was wrong with him. He started to talk slowler than usual in January this year, and gradually got worse over the months...
    • Twinkle
    • Thread
    • als bulbar bulbar onset decline depressed diagnosed diagnosis kids lift mobility nurses onset speech voice wrong
    • Replies: 10
    • Forum: Newly diagnosed
  9. A

    Bulbar onset PLS: how long before speech is gone?

    My husband was diagnosed in June with PLS. He had mild speech difficulties (slurring when tired) starting a year prior that have progressed since. He is increasingly nasal and slurred; he must speak each word slowly to be understood. He now has some toe drag with each foot and needs a cane for...
  10. A

    My mother’s diagnosis

    Hello to all, As I’m sure everyone here can understand, I never thought I would need to post on this forum. My only knowledge of ALS was through the ice bucket challenge! My 70 year old mother was diagnosed with ALS at the beginning of August this year. I first noticed something wasn’t quite...
    • AliCat
    • Thread
    • als boston bucket challenge bulbar bulbar onset clinic diagnosed diagnosis emg feeding feeding tube ice ice bucket challenge neurologist neurology onset reading speech stroke vacation
    • Replies: 6
    • Forum: Newly diagnosed
Back
Top