Hello , first of all i wish everyone immediate health. My name is Özgür and im from Turkey. I came here to get some answers and to be honest im a little bit concerned. İ dont want to annoy anyone but this country doesn't have so much knowledge about this disease (apparently me neither but still...
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als
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bulbarbulbar als
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Hello,
I am writing to you to ask for help understanding the last report from my father's neurologist. He is 60 year-old men who was previously diagnosed with PLS (three years of symptoms). I am interested in knowing if the new report suggests to you that the diagnosis might change to ALS. I...
Hi all, I'm a 33 yo female and have been fearing ALS for about 10 months now, since I started twitching all over my body. 8 months ago I had an EMG in my right arm and leg, came back normal. 6 months ago I felt like I was having difficulty speaking so I went to my neurologist and he cleared me...
My darling brave husband passed away last Wednesday at 13.22pm. He was so ill in hospital, but he proved himself to be a fighter for 30 days whilst suffering from bulbar mnd, pneumonia, sepsis, and a lower bowel perforation. I am so undoubtly proud of my husband. His name was Peter, he was 58...
Hello, all,
Anyone else have the experience of their PAL losing their sense of taste? Today I asked my mother how she liked the new seedless jam I got her. She said she had no idea. She can't taste most of her food. She did not have bulbar onset, but she is starting to have more bulbar...
Ignore if you must. I know you guys receive a lot of these and you guys obviously cannot diagnose me, I'm just concerned. For the past few weeks I've been noticing something with my voice. It's getting harder to yell and sing. I've also been having this constant feeling of something caught in my...
I know I have posted here in the past and I’m sure that will not fare well with many who have graciously taken the time to answer me in the past.
Basically have been having the sensation of food going up my nasal passage with swallowing of liquids and solids. No choking, no coughing just can...
G'day everyone.
So it's coming up to a year now since I've first been on here - you can read my following threads (though I really don't advise this):
Another "Bulbar ALS?" Thread
Ongoing ALS concerns...
I am now a 30-year-old MD currently living in Australia. I know on my last thread I said I...
6 months ago I had weakness on my right side, numb tongue, facial numbness, followed by fasiculations in my tongue and my entire body. Fast forward and I have right foot drop burning tongue, difficulty swallowing I just left the hospital after an endoscopy, swallow study and a manometry, clean...
Dear all,
My mom has been having a very difficult time with mucus accumulating at the back of her throat and not being able to swallow or get it out.
She uses a cough assist once a day which she hates. A suction machine helps a little but not as much as we hoped to. For medication, she takes...