bulbar

  1. L

    Question about Bulbar

    I really didn't want to post on here because I know those confirmed with this horrific disease have alot more on their plate. But I also recognize it is a great resource with alot of Knowledgeable people. A little about me, 42/m very active and big into fitness and bodybuilding most my life...
    • leadtheway
    • Thread
    • age anxiety back brain bulbar bulbar onset choke diagnosed emg fasciculations ice life medicine mnd mri muscle onset pain sporadic swallowing symptoms test tongue voice weakness work
    • Replies: 24
    • Forum: Could this be ALS?
  2. K

    FVC at diagnosis and progression rate

    My mom’s FVC was 50% during her initial respiratory evaluation at the ALS Clinic at Mayo. Because of this, she is not a candidate for any clinical trials. She will be receiving a cough assist and trilogy. Does her diminished pulmonary function indicate ALS progression is aggressive? She is...
    • Kellbellab
    • Thread
    • als bulbar bulbar onset candida clinic clinical cough assist diagnosis fvc onset progression respiratory trilogy
    • Replies: 2
    • Forum: Newly diagnosed
  3. R

    Terrified Bulbar or Limb Onset? Varying Symptoms

    Hello, I've been reading this forum for a few weeks now and I've held back from posting my symptoms but it seems to be progressing so I'm more anxious. I'm 28 year old male and I'm extremely worried that I might have early symptoms of Bulbar or Limb onset ALS. It all started about 7 months ago...
    • rockyman01
    • Thread
    • als anxiety atrophy back bulbar bulbar onset burning early family fatigue fingers heart lump neurologist onset shoulder swallow symptom symptoms tests twitching wanted weakness work worried
    • Replies: 8
    • Forum: Could this be ALS?
  4. A

    Please help.I need a opion at least!!

    Hello everyone, and sorry for my thread.It took me while to get the nerve to post here because i really think the best of you wonderfull people, but i am very freaked out. It all started 2 months ago when i got some fasciculation on my right upper leg.Since than, i started to have widebody...
    • Alexander
    • Thread
    • als arm bulbar bulbar onset cramps emg fasciculation fasciculations muscle muscle pain onset pain please help scared shower symptoms test tongue twitch wanted weakness worry
    • Replies: 3
    • Forum: Could this be ALS?
  5. K

    Slow or fast progression?

    Hi All, My dad was officially diagnosed with als in March 2018 although he was exhibiting signs as early as May 2017. I remember going to the neurologist for the diagnosis and my dad walked there. Slowly but he walked. Now he can barely walk in a walker. His left side is much stronger than his...
    • karzy81
    • Thread
    • als arm breathing bulbar dad diagnosed diagnosis early eating grace lift neurologist progression swallowing symptoms test walker
    • Replies: 5
    • Forum: General discussion about ALS/MND
  6. M

    25 years old - BFS has become something more - please help

    Hello all and thank you in advance. My name is Mike. I'm 25 years old, turning 26 next month. Surprisingly, in the face of what I wholeheartedly believe is an onset of ALS, I'm doing an okay job of trying to stay calm, but still very worried. I've always had an odd anatomy. God gave me a bit...
    • mikep123
    • Thread
    • als back bfs brain breathing bulbar burning early eye family fasciculations fibromyalgia fingers hypochondria mri muscle onset please help problem shoulder stupid swelling tongue twitches worried
    • Replies: 9
    • Forum: Could this be ALS?
  7. E

    Just a short question about mri

    Previous thread Sorry to disturb again. I have hypothyrodism, vitamin d and b12 deficiencies. Its been over a month since i started the treatments but i dont feel much different. Maybe more time is required or im not patient, i honesty dont know. I feel like i have a swollen tongue (edges...
    • Envy
    • Thread
    • als brain bulbar bulbar als mri tongue treatments vitamin d
    • Replies: 8
    • Forum: Could this be ALS?
  8. G

    another EMG, concerned

    Hi all you wonderful and supportive people in here! I have posted long time ago and have been in limbo for more than 2,5 years. Its really a hard time and I am progressing slowly and my symptoms and weaknesses are never ever «taking any break». I do have symptoms now in limbs and also bulbar...
  9. H

    Very scared - seems more like ALS each day

    Hi All, First I wanted to say thank you to all of the folks who take the time to read these posts and share their opinions. I've been reading on these forums for a little while now and figured it was finally time to share my concerns... Before I go into detail about my story, I'll quickly...
    • hurleydude4815
    • Thread
    • abdomen als als? atrophy bfs bulbar burning cramping early fasciculation food lead neurologist scared speech story stress swallowing symptoms symptoms of als tremor twitches twitching wanted weakness
    • Replies: 11
    • Forum: Could this be ALS?
  10. N

    Does this sound like bulbar onset?

    Earlier this week whilst driving my car I started whistling along to a song and not much sound was coming out, this is strange because i normally have a very strong whistle. I got worried and panicked a bit. Fast forward to this morning, I tried to get my dogs attention and went to make that...
    • niknakx
    • Thread
    • ability advice anxiety bulbar bulbar onset driving early family life lump onset problems speech swallowing worried
    • Replies: 5
    • Forum: Could this be ALS?
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