brother

Hello everyone, I've been away from the forums a lot recently, and also have not posted as much on Tube Chic, there is just a lot going on for me personally (not bad, just busy). I wanted to make you aware of this latest post, and also let you know that I have another post coming up soon...

Well after changing the locks and leaving a note asking to respect our Privacy My poor Daughter stopped to say Hi to her Grandmother and 5 mins later her uncle ( My late wife liz's brother) showed up and started screaming at her and telling her that She was horrible for treating her grandma like...

Hi everyone. I am new to these forums but unfortunately not to ALS. My father was diagnosed at the end of 2004 and passed away March of 2006. My grandfather was diagnosed in 2012 and passed away early 2013 (he had many other health issues, as well.) My grandfather's brother had Muscular...

At Tillie's request, I'm starting this thread about my decompression vacation. Had this trip planned and tickets bought before I last fiasco. So glad I did. When checking in at home Brian is doing fine, his old self, like nothing happened. I did clear this trip with him before leaving and he...

My mom passed away this past Thursday 04/13/2017 she went to Mayo in Fl. and participated in the bio marker research. She was tested and had the C9 gene her sister passed away 3 years ago with FTD. My mom only lasted a year after her diagnosis. She donated her brain and spinal cord. So I'm told...

Hello, Thank you for allowing me in your group. My sister was diagnosed in 12-12-13, she passed 5-4-15. There are 7 children total, a brother died at 22 months unrelated to ALS, all in relatively good health. My mother is adopted. Both parents 86, still living and in relatively good health. My...

My father just had an EMG by a neurologist who told him last week that he suspected ALS after observing tongue fasciculations in addition to his other symptoms. MRI clean. MG & Lambert Eaton, MS ruled out as well as Friedriech's Ataxia, which his brother had and died from. Quick back story. My...

Hi everyone, My father has, over the last 12 - 18 months, developed bilateral foot drop, presenting as more accute in the right foot. Although I am no doctor, I ran him through some basic neurological tests (standing on one foot, tipping his feet upwards, walking on the balls of his feet etc.)...

Hi all, My sister-in-law (my brother's wife) is in the last stages of bulbar ALS -- only a bit of movement possible in fingertips and lower legs. She can still talk, but my brother can interpret only about half of what she says. She coughs and chokes on her saliva many times during the day. Her...

Thank you all for taking the time to read this. I have been looking for answers and obsessing over how I “feel” for the past 11 months. I am a 48 year old male who has been active and athletic since childhood. I am dealing with some serious neurological issues but I have yet to determine “how...