breathing

  1. C

    Limp onset with possible breathing problem?

    Limb onset with possible breathing problem? my Dad had a hard night last night. He explained it to me as he woke up with twitching in his rib cage and back and shortly after had shortness of breathe. He says he feels today like it’s hard to take a full deep breathe. A side note is that...
  2. M

    Question about NIPPV machine

    My dad has respiratory onset ALS diagnosed in May 2017, he still has full use of his hands and his speech and swallow are only minimally affected but he is really really weak can only walk assisted for 2 or 3 steps so he has a power wheelchair for getting around. At first he would only need...
  3. rictak in IA

    I think I'm finally giving up

    7 1/2 years its been now. from a slight tingle in her left foot to total paralysis took roughly 2 years. very slow decline since then, really where do you decline to? her breathing is compromised, but O2 levels stay up with nightly use of the bi-pap. If it was just us, I'd probably suck it...
  4. S

    Im really Worried!

    Hello im 2,3 im a newbie to this forum but please hear me out to help get rid of my anxiety since i overthink all the time, So lately I've been have muscle twitches and jerks all over my body mostly when resting do the jerks happen and i feel my muscles spasm or twitch all over. But recently...
  5. wishmobbing

    Wishmobbing's boyfriend slipped away

    Dear forum friends, after a mostly good year, a couple of harder months and a final night with lots of music and holding hands my PALS peacefully fell asleep and never woke up again. In the 13 month after diagnosis he lost a lot, his work (never missed), his ability to move (accepted with...
  6. N

    Update about me

    Since my previous thread was closed i want to post a few new things that have been happening to me. I have started having breathing problems especially at night when i wake up to go to mum who yells. Its like iam out of breath cant get enough air in my lungs. Also i get breathless when i talk...
  7. P

    My symptoms.

    Hi, i'm a guy, 22 years old from colombia. A month ago I started with a multiple pain in my body, arms, fingers, and upper back and lower back. In the next days appear tingle in my hands and foots, lately appear twitchings in all my body, but more marked in my right hand. These last days I have...
  8. J

    Mother Diagnosed

    Hi everyone, My mother has been diagnosed with ALS 2 weeks ago. she is having a bulbar onset right now having a hard time swallowing, talking and eating. Her Neurologist told me her breathing is good and has a relatively slow progression. She is on Riluzole right now, seems like the progression...
  9. E

    Second EMG

    My father has been suffering from upper motor neuron signs over the past three years, with no apparent lower involvement (clean EMG and still no fasciculations), which led doctors to think of PLS. In a second EMG, the results are indicative of "mononeuritis multiplex or motor radiculopathy", but...
  10. N

    Trach - What is it like?

    Hello I'm trying to get a general idea from those who have gone through the tracheostomy process. What was your recovery time like and pain? How does it feel when breathing afterwards? Is it something you have to get used to? Is it better than what you were experiencing as far as breathing on...
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