breathing

So the beginning of this saga began 11 years ago with stroke. Lesion located on my left Thalamus/ brainstem. Right leg has constant burning, aching, pins & needles, feels like someone tapping my right foot. That’s past history. Approximately 5months ago my right foot began twitching, then...

Hello! First of all, I am really grateful for all the help of you, PALS and CALS, provide to us that are still lost in our medical conditions, and I respect you immensely for that. In August, my first symptomes occured. After a spasm that woke me up, my middle finger on my right foot started...

Please tell me if this sounds familar to any of you... I am a 31 year old mixed race female and 2 months ago I started to have trouble swallowing, then trouble breathing came next, soon all the muscles in my body hurt and felt very weak. The weakness and pain started with my neck, jaw and upper...

My Dad goes to his sleep clinic appt tomorrow and I wanted to get some insight and advice from other PALS before. He did an over night sleep test last week and found out that he has sleep apnea. Tomorrow he goes to pick up a machine from Mainland Sleep. The sleep technician said he should...

Started giving Sibyl morphine @ 4pm yesterday. Instructions say 0.5 ML every 4 hours but I waited until 3:30 this morning for the second dose. Also giving her lorazepam after discussing with hospice nurse. She is resting comfortably but very shallow breathing. Thru the tube the morphine...

Sadly, my sister passed away last week, and the family is gutted. She was a bright light, and we miss her terribly. My 87 year old Mum is grieving hard. Yesterday she was crying with full abandon, and suddenly felt she couldn't breathe. I've read here before that PALS can have spasms, and...

this is the second time this year I've been down and out. The worst part is the breathing is extremely strained. that is nothing new and I have never used bipap or trilogy. I'm getting antibiotics tonight and so far my regimen is Musinex, breathing treatments with the mask and smoke stuff...

G'day everyone. So it's coming up to a year now since I've first been on here - you can read my following threads (though I really don't advise this): Another "Bulbar ALS?" Thread Ongoing ALS concerns... I am now a 30-year-old MD currently living in Australia. I know on my last thread I said I...

I wasn't sure if I would post this at all. After deciding I had no idea where to post it but, for me, it feels like a rant/complaint so here it is. Since my diagnosis I've always believed that I should take good care of my general health, get some good sun each day possible, get some light...

Hello, I want to share with you our story in full. There are bits and pieces all over the forum, but I wanted to gather everything together. My father received a final diagnosis of MND yesterday. My father (60) started experiencing symptoms quite a while ago, around the winter of 2016. He...