I posted two years ago but was unable to post on that thread but it had been closed.
During the time between then and now for the most part I was able to move on from my fears of ALS. However that has changed recently as I have developed a mild slur, not noticed by normal folks but was...
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I've had a Trilogy 100 for a month, even though I have no problems breathing. When they tested me a month ago, I was at 90 and 64. But they kept having me blow over and over until I finally blew one under 50, which qualified me for the Trilogy.
The RT came to my home and setup the Trilogy. She...
Hello. My husband was diagnosed ALS May 24, 2018 at age 43. It all began in April 2017 when he began having difficulty clipping his nails, left hand onset first. From there it was over a year of testing, specialist, etc, which is the only normal thing I guess about this disease; difficult to...
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My pALS is my mom. She is newly diagnosed with bulbar onset ALS. As of now her mobility is not impacted too much, just her speech, swallowing and breathing.
We have been discussing living arrangements as her mobility and breathing decline.
Other pALS out there, what did you decide? Did you...
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I’m so sorry to be posting here, I just feel so nervous and can’t get into the neuro for a few months. Thank you for taking time to read this.
I have had muscle weak in my right arm since November to the point it’s hard to lift my arm to brush my hair. I now have it in my left arm as well, also...
My PALS is on Trilogy for about 12 hours at night and another 4 during the day. On two occasions, he has had difficulty breathing on his left side at night while on the machine. The first time it took about 30 minutes of sitting up to recover but last night it was longer. Our RT recommended...
Karen, I must admit I am wondering the same thing...slow, fast, average? I know today is a gift, we should live each day and day by day, but my wondering has to do with decisions that need to be made. My PALS was diagnosed in January 2018 with symptoms becoming very noticeable in August 2017...
Hi All,
My dad was officially diagnosed with als in March 2018 although he was exhibiting signs as early as May 2017. I remember going to the neurologist for the diagnosis and my dad walked there. Slowly but he walked. Now he can barely walk in a walker. His left side is much stronger than his...
Good evening from South Africa
Firstly, tremendous sympathies and all the strength in the world to all of those suffering from ALS.
I guess I may be one of those hypochondriacs that I'm sure you guys all roll your eyes at! :lol:
I am going for my first ever EMG tomorrow morning and can't...
My PALS experiences random bouts of severe nasal congestion. He takes an antihistamine but no decongestant. When this occurs, it is difficult for him to use the Trilogy because it is easier to use when breathing through his nose than his mouth. It is also difficult to blow his nose due to the...