breathing

  1. V

    First ALS Clinic Visit

    Yesterday we had our first ALS Clinic visit. I think my PALS was overwhelmed by all of the people. He says he is very tired. He was diagnosed 3 1/2 years ago but was pretty much on a plateau until about 2 months ago when he seems to have fallen off a cliff. For the first 3 years his left...
    • vltsra
    • Thread
    • als als clinic arm bipap breathing chair clinic diagnosed ftd progression running speech travel
    • Replies: 8
    • Forum: Current caregivers
  2. K

    Thoughts on When to Get Hospice

    My PALS and I have decided to use hospice when the time is right. He uses a Trilogy about 17 hours a day, does not want to be trached or have a PEG. He is able to eat whatever he wants (with the help of water to wash it down), he transfers from scooter to chair/commode but anything he does is...
    • katygal
    • Thread
    • adjustable advice age bed breathing breathing issues chair clinic cough assist decline eating fvc helpful hospice hours love mip peg pwc scooter support transfers trilogy
    • Replies: 6
    • Forum: Current caregivers
  3. E

    Breathing regular checks

    Hey everyone! Today my father had a breathing exam and, as it has been the case since he is testes, the results were perfect. In the past two years and a half since first measured, there has been no observable decline as measured by any indication of respiratory function. Given these results...
    • Emanol
    • Thread
    • breathing dad decline father mnd respiratory timeline wanted
    • Replies: 4
    • Forum: Current caregivers
  4. K

    Trilogy Settings with Progression

    My PALS has been using a Trilogy for the past year. His latest FVC was 26%, with MIP at 20 and MEP at 32. We can tell his weakening muscles continue to affect his breathing, just since Clinic in February. He had some issues with air hunger at night and increasing EPAP from 6 to 8 took care of...
  5. D

    Bulbar ALS?

    Thanks to you all for taking the time to read this post and answer my questions. I'm a 42 year old Male. For the past month my tongue has felt extremely swollen and sometimes sore towards the back. Occasionally I will get tingly/crawling feelings on the side. It is difficult for me to...
    • Dadof2
    • Thread
    • als als? back breathing breathing issues bulbar bulbar als emg questions speech tongue twitch twitches weakness
    • Replies: 17
    • Forum: Could this be ALS?
  6. C

    Just a question

    So I got emg Monday but I’ve been having weird problems with my right side and he did left I asked him after why he didn’t do right and said he wasn’t checking for als for me cause I have no signs of it and said abnormaliltys would show up anyway cause I’ve been having 4 months of symptoms the...
    • Cb16
    • Thread
    • #als als anxiety back breathing burning clinical emg foot go away pain problems shoulder stress symptoms test twitch
    • Replies: 12
    • Forum: Could this be ALS?
  7. R

    Advice about EMG result

    Hi everyone. First time poster, I first want to thank all of you for what you do on this site. Truly inspirational. I will be brief. My symptoms are twitches mostly in left calf ( about a month now) but sporadically other places ( all over). I have no clinical weakness that I can discern...
    • RJD19
    • Thread
    • advice als atrophy brain breathing clinical emg mri muscle problems swallowing symptoms test twitches twitching weakness
    • Replies: 5
    • Forum: Could this be ALS?
  8. M

    concern over recent symptoms

    Hi all, First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all over...
    • Mike1086
    • Thread
    • anxiety back breathing cold cpap cramping diagnosed emg fatigue muscle muscle fatigue muscle pain muscle twitching pain shortness of breath sleep symptom symptoms test turkey twitching voice wanted weakness worried
    • Replies: 0
    • Forum: Could this be ALS?
  9. M

    Concern over recent symptoms

    Hi all, First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all...
    • Mike1086
    • Thread
    • anxiety back breathing cold cpap cramping diagnosed emg fatigue foot muscle muscle fatigue muscle twitching pain shortness of breath sleep symptom symptoms test turkey twitching voice wanted weakness worried
    • Replies: 5
    • Forum: Could this be ALS?
  10. ReginaS

    breathing difficulties

    Hi all, My PALS describes that he has the feeling that the air passages in his head (above throat) are not staying open but collapse or close when his head is in certain positions. Do you know what is happening? He is uncomfortable lying down, elevated lying on one side is OK - on the other...
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