brain

  1. G

    Bulbar issues, fatigue

    Hello! First of all, I am really grateful for all the help of you, PALS and CALS, provide to us that are still lost in our medical conditions, and I respect you immensely for that. In August, my first symptomes occured. After a spasm that woke me up, my middle finger on my right foot started...
    • GreyWanderer
    • Thread
    • abdomen anxiety arm brain breathing bulbar cals diagnosed emg fatigue foot headache improvement issues lyme neurologist pressure problems scared speech support swallow tests tongue treatment twitches wrong
    • Replies: 4
    • Forum: Could this be ALS?
  2. E

    Vitamin deficiency? Thyroid? or possible bulbar als?

    Hello , first of all i wish everyone immediate health. My name is Özgür and im from Turkey. I came here to get some answers and to be honest im a little bit concerned. İ dont want to annoy anyone but this country doesn't have so much knowledge about this disease (apparently me neither but still...
    • Envy
    • Thread
    • age als als? atrophy brain bulbar bulbar als diagnose health mri pain problem reflex scared speech swallow symptoms tests tongue tongue atrophy turkey vitamin d voice
    • Replies: 2
    • Forum: Could this be ALS?
  3. opusensemble

    Dr. says it's likely to be PLS. Will MRI and EMG help?

    Hi everyone, This is my second time posting. First time I had not been checked by a neuromuscular illness doctor yet. Meanwhile I got checked and this doctor identified the following symptoms with 1 year progression since onset: ✓ Generalized Hyperreflexia ✓ Generalized stiffness in 4 limbs ✓...
    • opusensemble
    • Thread
    • als atrophy bfs brain clean emg diagnosis emg fasciculations mri muscle muscle wasting onset pls pls diagnosis progression stiffness symptoms weakness
    • Replies: 21
    • Forum: Could this be ALS?
  4. M

    Want to buy used tobii eye gaze dynavox

    Dears, I am looking Tobii eye gaze dynavox for my 5 years old daughter, she has brain trauma and Tobii would be great for communication. But we do not leave in USA and insurance doesn't cover it. If you have one for sale pls contact me. All the best Maria.
  5. G

    question about weakness and my symptoms

    Hello all, First of all wanted to say that my heart goes out to everyone who is dealing with this, and to those who take precious time out of their day to help others here. I'm a 31 year old male. I've been dealing with serious health worries for the past 3 months, and just to go through...
    • gilgor87
    • Thread
    • ache als anxiety arm back brain burning cramping emg health heart helpful hip mri muscle muscle twitching shoulder symptom symptoms twitching wanted weakness work worries worry
    • Replies: 4
    • Forum: Could this be ALS?
  6. E

    What a journey - worried about ALS - former Cancer Survivor

    Hello everyone - Let me start by saying you all have been excellent in guiding the users here. You approach each person with respect and understanding and bring great expertise from your own experiences. I have read the sticky notes and many other posts. My story - I am 47 years old male...
    • Eagle7
    • Thread
    • als anxiety back brain clinical early emg info medical mri muscle muscle twitches muscle twitching neurologist normal emg pain story twitches twitching weakness work worried worried about als worries
    • Replies: 5
    • Forum: Could this be ALS?
  7. A

    So worried

    6 months ago I had weakness on my right side, numb tongue, facial numbness, followed by fasiculations in my tongue and my entire body. Fast forward and I have right foot drop burning tongue, difficulty swallowing I just left the hospital after an endoscopy, swallow study and a manometry, clean...
    • Amylife
    • Thread
    • brain bulbar bulbar onset burning clean emg emg foot foot drop mri muscles neurologist onset pain swallowing tongue voice weakness worried
    • Replies: 35
    • Forum: Could this be ALS?
  8. J

    Numbness, muscle twitching, and no diagnosis? Read this.

    This post is for those who are currently experiencing numbness and muscle twitching and, like me, tend to automatically assume the worst case scenario. I felt compelled to write this a year and a half after first experiencing neurological issues because #1, it seems that a lot of folks who...
    • jambo6
    • Thread
    • als research arm back brain diagnosis early fatigue fingers insomnia muscle muscle twitching no diagnosis pain pressure research story stress swallowing symptoms tests twitches twitching twitching arm undiagnosed weight loss
    • Replies: 1
    • Forum: Could this be ALS?
  9. S

    Unsure how to approach symptoms

    Hello guys, I need some help here. I'll try to keep this as short as possible and before I start I will say that I've read the sticky. I'm a 25 year old male and for the last 11+ months I've been experiencing some really awful symptoms that (with some direction from my GP) has pointed me in the...
    • SavPav
    • Thread
    • als balance brain falling father ice neurologist night parkinsons possible a problems progression risk stiffness symptom symptoms unsure
    • Replies: 2
    • Forum: Could this be ALS?
  10. A

    This one’s for the worriers

    Hi all, I’ve been lurking here on and off for a little over a year and have even caved and posted a few threads. I just had my third clean EMG in 12 months. There was a point shortly after the onset of my symptoms where I was convinced I had ALS. I would come home from work and basically take...
    • Artie1217
    • Thread
    • als back book brain clean emg depression emg fatigue health hope mistake mri neurologist onset problems questions symptoms tests thenar work worry
    • Replies: 1
    • Forum: Could this be ALS?
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