boston

Tune in tomorrow! ESPN is doing a feature on ALS patient and former Boston College baseball star Pete Frates. He's the man responsible for the ice bucket challenge going viral, which most of you know. Should be an interesting feature! And anther major exposure to the general public for ALS...

From: Steve Perrin (ALS TDI) <[email protected]> > Subject: Volunteers Needed for Precision Medicine Program > Date: August 11, 2014 at 3:06:16 p.m. CDT > > YOU ARE NEEDED! > The first ever integrated, precision medicine effort to end ALS! > > The ALS Therapy Development Institute is conducting a...

Why Is Everyone in Your Facebook Feed Dousing Themselves in Ice Water?

Being discussed over in ALS TDI here. Currently being eval'd by ALSUntangled here. It hit Boston channel 5 here. It's a commercial product derived from soy beans, a peptide. It's also expensive at $80 for a bottle of 120, at up to 10 caplets per day.

Hello, I'm a 46 yr old male and for the past six months I've Ben struggling with the thoughts of als. To make a long story short in Jan. I both my arms from my elbow to my fingers went numb. I went to the hospital andthey admitted me for ppossible stroke. After an mfi with contrast and two ct...

I discovered approx a year ago some strange hand issues extending my fingers. I first discovered this trying to reach back to remove it from my pants pocket. The issues became somewhat more noticeable over the course of a year. I went to my primary who did some tests and sent me for 2 MRI's...

Hi Everyone, I would like to introduce myself. My husband has been diagnosed with MND. I have been lurking on this site since January of this year because ever since the first dirty EMG back in August of 2012, I have been wondering if this would turn out to be ALS. Because he is so slowly...

I have to get a couple more tests done and paperwork in order, but I am going to make an appt. there next month, if they will take me that soon. Is there a particular doctor you like? Thank you.

I know some of us still get out and about by ourselves. I finally found a medical alarm that goes everywhere. I'm not affiliated with the company, I don't make any money from them, but I think this is a great product. It is basically a mini cell phone about 1 x 2" square and less than a couple...

Does anyone have a doctor or clinic that they would recommend to someone who has conflicting diagnosis of ALS, spinal injury or other possible disease? I've been to 3 neurologists and all three say something different. In the meantime, I'm getting worse and now having trouble breathing. I'm in...