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I have no arms and legs functonality, but speaking, swallowing and breathing is no problem yet. I was diagnosed with ALS in April 2014. Since then I have FT 2x half an hour in a week. Plus several "hulpmiddelen" ( things, equipment that support and help, (cannot translate)). Now I am using a...

Hi all, My name is Mallic and I don't have ALS. After experiencing every ALS 'symptom' in the book I am happy to finally say that. In 2014 I started experiencing fasciculations which eventually spread over my entire body and I signed up for this website under a different alias. In 2015 I felt...

So recently like I said in my last thread I've been struggling and I know my dad is struggling more. It makes me feel horrible to get upset in front of him because he is the one with this disease, not me. I am sick at the thought of losing my dad but he is living with this not me and if he can...

I do my research and am well connected with lots of resources, but sometimes I feel like when I ask for something specific that is needed from a service provider they don't listen to me. For medicare funding purposes we need copies of notes from a face to face appt with a primary care doc...

Okay... I know it's been discussed a bit before in the forums, but not at length. But the more I read about the newly found gut-brain connection, the more I believe that a series fecal matter transplants could slow or stop some types of ALS progression. I know, call me crazy. Has anyone heard...

Hi everyone. Some background info before we start: I am 30 year old male. I have been diagnosed in the past with: Spina Bifida Occulta Scoliosis (30 degree curve in Lumbar and 49 in Cervical region of spine) Sensorimotor OCD related to swallowing and breathing Testicular cancer which was...

Hello, My neurologist dropped a bit of a bomb on me today, and I felt compelled to post here. I've been under high suspicion for MS for two years now, but some pieces of the puzzle just aren't lining up and it's been a long period of observation, more or less. It started with left foot drop...

Update on my mom, she continues to decline quickly. She is now exclusively in a wheelchair as she can no longer use the rollator. She has a home health aid that comes in two times a week for two hours in the mornings but home health aids are expensive. My mom doesn't qualify for palliative or...

Hello, I haven't posted for quite some time. It appears my prior post had been closed. Sorry if that is inaccurate and I'm posting out of turn. So I got married and the wedding/honeymoon is finally behind me. I have been doing very well with not researching the internet for things on ALS and why...

To the website, not the disease, but I understand it's in somewhat bad taste to post new stuff (especially long stuff, and this is long). However, I thought this might help some people. Some background: my PALS was diagnosed August 2011. At the time I was 5 years free from anti-depressants...