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dI have questions about my symptoms, have read a lot so hopefully won't waste your time, but please know I value your time: Symptoms: Started with tingling all over (which I know is not ALS symptom) and twitching, twitching all over but mainly in thighs, calves and feet, both sides. Twitching...

Greetings, First I want to say “thank you” to all of you past and present that have posted on this forum. Although I’ve only been a member for a few months now, the information and encouragement you all have provided has helped. Was diagnosed April 15, 2017 with ALS. The below is the story...

Hi everyone :) I'm posting this here in the General section, rather than in the PEG related area, because I want everyone to see it. Whether or not you, or your PALS have a tube, or plan to have a tube, I think it will interest you. The woman who wrote this recipe book lost her...

Hello everyone, I've been away from the forums a lot recently, and also have not posted as much on Tube Chic, there is just a lot going on for me personally (not bad, just busy). I wanted to make you aware of this latest post, and also let you know that I have another post coming up soon...

My husband has serious coughing and choking throughout the day and especially at bedtime and during the night. With or without food/liquids. I know sometimes it is the collection of mucus because I can hear it. He almost sounds like he is drowning. Other times it seems dry so I assume it is...

I downloaded the audible book, "Prayers & Promises When Facing a Life-Threatening Illness" written and narrated by a PALS named Ed Dobson. Pastor Dobson was diagnosed with ALS in 2000 at age 50. He lived with ALS for 15 years. The book is available on Amazon and Audible dot com. Listening...

Hi guys, Second time I came to take advantage of your patience with us, hypochondriacs. I hope I get three strikes :) My issue is my right hand. More specifically the abductor muscles (FPB is most affected. - my best guess as I am not an anatomy expert.. The muscles on the right hand look...

Hi everyone l would like to say firstly im really sorry that l am having to post my situation here knowing the amount of pain and stress that most are going through, l have read the stickies time and time again but now just cant help myself:( A few weeks ago l was experiencing pain in joints...

First I am totally amazed by everything in the forum. In the past hour or so I have cried and laughed and realized we all have a lot in common. Not just ALS, but emotions and stories, support and heartache and more. I was diagnosed in November of 2016. Originally the thoughts being passed...

My mom is newly diagnosed with ALS. Of course my family is going through the initial shock of it. But we are now looking at options when it comes to slowing progression of the disease. My mom currently isn't on any meds. My dad has gotten in touch with Dr. Burton Feinerman regarding the stem...