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i asked "how much more", and was wrong for doing so. i have no right feeling sorry for myself. it is becoming increasingly difficult to remember who i am while this disease and the illness of my loved ones comes bearing down on me. i need to remind myself to be thankful and to use what ever i...

Hi. Lately (few months) I have been feeling depressed and anxious. I am afraid of dying. Not the dying itself, but the existential questions around it. Was my life useful? Have I been inspirational, funny, social, intelligent...good enough? Will the not forget me? I keep getting stressed...

Hello - I am a 38 year old male 6'0 173 lbs Medication: Adderall, Zoloft, Kratom I been noticing lately that I get very tired when walking up hills or stairs. After the second flight my thighs really start to burn. I am not out of shape but I also don't work out regularly. I have about 2...

I was diagnosed by a neurologist about 5 weeks ago after two EMGs and MRIs confirmed his suspicions. I'm not sure how long I've had this as I was in treatment for Lymphoma in 2014 and never fully recovered from Chemotherapy. Now that I have done some research, I think I was passing off some...

A funny spin on perceiving my disease-- Is anyone else impressed by how much they still *can* do when you look at your muscle atrophy? I look at my hands and they look so shocking to me from atrophy, as if they belong on someone whose been living in a concentration camp. Yet here is am...

Hi all. Wanted to say hello and express how much respect I have for everyone here after reading through many posts in which people were helping and reassuring others. It's heart warming to see. Over the past three weeks I have developed muscle weakness, twitching and fatigue. Starting in both...

Just got finished reading a chapter in this book ,about dealing with ALS. One sections says in order to drive and be covered ins. Company must be notified. Has anyone had a problem with this. I've never been told or heard of this , just did a 27 hr. Trip back from Florida to Ontario. Anyone have...

Hi folks, (I hope it's appropriate to post this here - my apologies if not - I'm new to the site and I thought this might just help someone...) I was diagnosed 16 years ago. In 2002 I was having falls and finding it awkward to place my feet but I never saw the diagnosis coming. I was just...

I want you to write a book. I would like as many of you as want to contribute 5+ pages about what you have learned about, ALS including tips and tricks, what you have learned about life living with a PALS, and life after your PALS has left. I would put all my energy that I have left into...

Hello everyone, I would like to start of by saying that I’m sorry to everyone here and that I have read the stickies but I continue to scare myself into thinking that I may have this sinister disease. For me everything started about six months ago now with symptoms that wouldn’t have led me in...