biopsy

  1. E

    I have read the sticky note but I still need your help

    Hello everyone, I want to give a warm tight hug to all of you suffering from this disease. Just give you a long hug with love and love... just love and silence. I cannot find my words... -------------------------------------------- I need your help and will try to be short... this summer...
    • EppurSiMuove
    • Thread
    • anxiety back bed biopsy breathing breathing problems burning chair early falling heart life love magnesium muscles neurologist problems spasms stiffness swallowing symptom symptoms tests tongue twitch twitches vitamins work
    • Replies: 2
    • Forum: Could this be ALS?
  2. A

    What is a relevant symptom and what is not?

    I am a 59 year old, caucasian woman. I am awaiting an appointment with an ALS specialist. Thinking back, I had weakness in my left arm as early as Jan. 2014. In May 2014, I had an event that included dizziness (felt like I was banking to the right all the time) and, after a week, tingling in...
    • Artwinged
    • Thread
    • als arm atrophy back biopsy brain driving early emg ideas immune lift muscle biopsy muscles neurologist night sleep speech stroke swallowing symptom twitches weakness
    • Replies: 4
    • Forum: Could this be ALS?
  3. Nuts

    Celiac Disease

    I've hesitated about posting this just yet because I'm not sure that I know what to do with the thoughts and emotions that it's caused me. At our last clinic appt, D r Bedlack told us that because of a recent ALS Untangled review on Celiac Disease, he is now testing everyone for it when they...
  4. Rhonda J

    So many mixed emotions....I am a horrible person

    My husband has had this horrible disease for 6 years. He is 57 and I am 50. We have been married 11 years. He is a 25 year Retired Veteran of the Air Force. It came on fast, it took his voice and his walking first...then gradually he has declined to the point of being in a wheelchair 12-14...
    • Rhonda J
    • Thread
    • ache angry back bed biopsy catheter children communication communication device crying cure dad depression early family hours life love lump meds military mistake ohio peg treatment veteran voice wheelchair worry
    • Replies: 18
    • Forum: Current caregivers
  5. R

    Was on here a year ago and need your further advice

    Dear All, I had written on the forum around a year ago regarding some symptoms that i had developed, in a nut shell it started off as weakness in my arm and leg and then progressed into twitching all over my body, flash forward almost a year ahead and i can't really say if its gotten much worse...
    • Robb
    • Thread
    • advice als do i have it arm back balance biopsy diagnosed driving emg exercise foot life mnd muscle muscle biopsy neck pain pain pressure problem speech swallowing symptoms twitches twitching vision weakness work worry
    • Replies: 8
    • Forum: Could this be ALS?
  6. T

    It's not always ALS

    So I've been at this process trying to get a diagnosis for three years now. It's been a hard road. I am still in the Army and have been for 17 years. My disease process and diagnosis has literally been all over the place! I'm no faker or malingerer, quite the opposite. I was used to running five...
    • Tony292
    • Thread
    • als atrophy biopsy brain breathing clinical denervation diagnosed diagnosis medical mestinon mri muscle muscle biopsy neurologist running undiagnosed vision wanted weakness wheelchair
    • Replies: 4
    • Forum: Could this be ALS?
  7. D

    Someone recognizes my story? Serious muscle problems since 8 years.

    Hey guys, I follow this forum for about a year now and didn't know if I should post my story in this topic, but I am a little concerned. Good thing to know: I do not think I do have ALS, but clinical research shows high neuron problems, they thought it was suspicious. Clinical research is...
    • Dutchie
    • Thread
    • advice age als back biopsy clinical eating emg fasciculations friend hope hours hyperreflexia lift mri muscle muscle weakness muscles nose pls progression research sleep speech stiffness story symptoms tests weakness wheelchair wrong
    • Replies: 22
    • Forum: Primary lateral sclerosis
  8. Nikki J

    Precision medicine still enrolling

    They are not yet fully enrolled Precision Medicine Program | ALS Therapy Development Institute You have to travel in Boston and they do not pay for the trip or lodging. It is just a few hours visit. Medical history blood draw and skin biopsy. Every month you fill out the functional rating...
    • Nikki J
    • Thread
    • als arm biopsy boston drugs functional rating scale hours medical medicine test therapy travel trip
    • Replies: 0
    • Forum: Research and trials
  9. Nikki J

    Update on the skin biopsy study

    That KCAE linked in the retigabine thread. The listing was old but now updated ALS Clinical Trials | ALS Clinical Research | The Northeast ALS Consortium (NEALS) Anyone in the Boston area or visiting should look into it. If you are on blood thinners, have a history of keloid formation or are...
  10. karla r

    opinions from people who know.. kinda scared

    Hi, just wanting to know if my doctor is on the right track, or if I should maybe look for a new doctor. I guess cause I am a little scared. Here is what happened. I noticed numbness and problems with my leg, first the right. Originally, they said after tests. I had had a minor stroke. September...
    • karla r
    • Thread
    • als back biopsy chair clinical diabetes diagnosis falling foot meds mri muscle muscle biopsy muscle wasting muscles neurologist power power wheelchair problems scared stroke tests walker weakness wheelchair
    • Replies: 30
    • Forum: Could this be ALS?
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