biopsy
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Newly diagnosed, atypical presentation, looking for similar cases
Hello, I was dx with ALS last week, after much testing and an earlier diagnosis of polymyositis. I have been told my case is atypical. My first symptom was leg weakness, which began in thighs before becoming distal, and with a dx of polymyositis had been on a run of Prednisone, on which I...- LizF
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- age als babinski's biopsy decline diagnosed diagnosis foot improvement muscle muscle biopsy muscle twitching newly diagnosed story symptom symptoms testing twitching weakness
- Replies: 41
- Forum: Newly diagnosed
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Un-diagnosed for 7 years - recap and update
Hello everyone, I have stayed off this forum for a while as I do not have an ALS diagnosis and I wanted to avoid being disrespectful by bringing up conditions that probably don’t scratch the surface of what some of you are going through. However, I was exchanging a number of visitor messages...- Matt21
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- advice als arm back bfs biopsy diagnosis emg exercise fasciculations father fatigue fibromyalgia lyme muscle muscles neurologist pain progression shaking shoulder sleep stiffness symptoms tests undiagnosed vitamins wanted
- Replies: 9
- Forum: Could this be ALS?
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Preliminary diagnosis overturned by 2nd opinion
It seems that this roller coaster is finally coming to its last stop, 21 months from the beginning of emg/ncs and referral upon referral we find ourselves in limbo but with the advice of those on this forum with a competent Dr. When I read through posts I see a very common theme the g is very...- Kerbear
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- 2nd opinion advice back biopsy children clinical diagnosis emg hours medical mistake muscle muscle biopsy work
- Replies: 6
- Forum: Newly diagnosed
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A thank you to the moderatorsl
Since I first posted on this site I have had so much helpful and useful information. I thank all of the moderators for all of your patience understanding blunt but true words and suggestions. My last postings were about my frustration with the care I was receiving. I asked the very questions...- Kerbear
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- als biopsy clinic emg family frustrated helpful hours information lead life muscle muscle biopsy questions
- Replies: 1
- Forum: Newly diagnosed
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further details
Good morning All, As I just registered a few days ago, I thought I should probably fill in some details about myself and my status. I am 63, just, and was diagnosed Jan 14, 2016. In June of 2014 I started to notice fasics' running rampant. My PCP didn't seem concerned even with an elevated...- bigbrat41
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- back biopsy cals cramps diagnosed emg female finger fingers ice love marijuana muscle muscle biopsy neurologist progression running stress symptoms tests weakness
- Replies: 3
- Forum: Newly diagnosed
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Atrophy Clean EMG of thigh only
Hello, Although I don't have clinical weakness I have been experiencing weakness for over a year and have recently started suspecting I may have ALS. I'll try to keep my story short....I am a 47 year old woman. I am overweight and have been for most of my life. About 2 years ago I wasn't...- Chia01108
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- als arm atrophy back biopsy brain burning christmas clean emg clinical emg exercise foot gabapentin life lyme medicine mri muscle neurologist pressure story sympthoms tests twitching vitamin d weakness
- Replies: 8
- Forum: Could this be ALS?
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please read my post and see if anyone can help
Hi all. I’m new to the group and I have a lot of things going on and I’ve read all I know to read on here to try to help me figure out if this may be ALS. I do know all people are differ in this and all disease even in getting a diagnosis but I really would appreciate any help I could get...- Dave1
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- biopsy hours muscles
- Replies: 15
- Forum: Could this be ALS?
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Searching for a Diagnosis and suggestions
Hello everyone. . just wanted some feedback from someone who has experienced the ALS journey. I started having fasciculations mainly in my legs about three months ago. I was referred to a neurologist and had several testing done. I have an elevated CK level that is chronic and I had an...- Ohiogirl
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- biopsy
- Replies: 4
- Forum: Could this be ALS?
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New CAL Member and Equipment Information
Hi Everyone, Although I have visited this forum from time to time, this is actually my first posting but I hope the information that we want to share will also be of help to other PALS and CALS out there: But first I thought I would start off by giving you some background on our story so you...- SJFBC
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- ability age biopsy clinic cramping cramps diagnosis exercise eyes fasciculations father hope hours lift mobility morale muscles neurologist pneumonia pressure pressure sores progression quality of life sad story swelling symptoms tests twitching wheelchair worry
- Replies: 29
- Forum: Newly diagnosed
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At a stand still...
All of you are very smart and I am not sure how I should approach my neuromuscular doctor. We are very disappointed in the clinic we are using. The first major problem happened in November after a clinic visit in October there was talk of a muscle biopsy the nurse called me and asked me to come...- Kerbear
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- als back baclofen biopsy breathing clinic confusing cure diagnosis emg eye information mnd mri muscle muscle biopsy muscle wasting physical therapy pls problem sad speech swallowing test tests therapy treatment
- Replies: 10
- Forum: General discussion about ALS/MND
