Hi All. I am now chronicling my fight against ALS on Facebook for those who want to follow and connect. I encourage you to share your stories with me as I raise awareness
https://www.facebook.com/Every90Minutes
Every 90 minutes someone is diagnosed and another dies of ALS. Thanks. Jay
Hey everyone!
My name's Ken, and I'm new to this forum. My father was diagnosed with ALS this past December, and it has definitely been a life-changing experience. I am a new graduate of the University of Pittsburgh and I'm currently involved in the Western PA chapter of the ALS Association...
Hello everyone. I would first like to say that to each and everyone of you battling this disease my heart and prayers are with each and everyone on you. Only God can give us the strength to deal with these devastating diseases and I am hopeful that He can lead you through with dignity and hope...
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since I can still speak I am doing what I can to continue to raise awareness of this disease. Here are some links to the articles the local paper in Richmond is doing about me.
Caregiving needs will grow as ALS worsens - Richmond Times-Dispatch: Richmond Arts, Entertainment & Lifestyle
Friends...
I found this on FB and thought someone here would like a chance to win.
NMEDA | 'Share' this to Raise Awareness for People with Disabilities
mobilityawarenessmonth.com
Everyone has a story to tell. Help us spread the word of National Mobility Awareness Month and the opportunity for Local Heroes...
our local paper, the Richmond Times Dispatch, is doing both the print and video series on my struggle with ALS. Imagine my surprise to see me on the front page this morning! I'm hoping this helps awareness for all of us. Here is the link:
VIDEO Living with ALS: Hollister Lindley - Health -...
Hello everyone,
I am not sure if you had the opportunity to read my blog. My husband was once a professional Santa at one of our local malls from 2009-2011. He was so good with the children and had planned on being Santa for a long, long time. Unfortunately ALS had other plans. He was...
This article tells about a NFL television series that features Steve Gleason. I haven't seen this posted here yet, but I apologize if it is a duplicate that I missed. Looks interesting!
Steve Gleason to be featured on NFL Network | New Orleans | The Advocate ? Baton Rouge, LA
Steve Gleason...
Just found out the acclaimed mnd film 'i am breathing' will be shown on film 4 free view channel tonight at 11.15pm.
I posted about this film some months back.
Its about a 34yr old man called Neil platt and his final months with als.
Not sure if your not in the uk if you can get this...
I am not a very political person but I was wondering if there is anything I could do to help lobby for better resources to help with the care of PALS or to even help raise awareness about in and other related disease on here. It breaks my heart that there is nothing I can do to help out. Just...