awareness

My brother has been in intensive care for the past week on life support. I spent the day with him yesterday and one of the nurses struck up a conversation with me. She asked me if I was a relative and I told her he is my brother. She then told me she's been a nurse for 24 years. Then she asked...

Hi all, My name is Olly and I lost my Dad to MND/ALS a few years ago. He was diagnosed when I was 7 and died when I was 14 so much of my childhood/teenage years was spent caring for him before then dealing with the bereavement. I am now carrying out a PhD/doctoral study to investigate a way of...

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Augie Nieto of Augie's Quest has had ALS for ten years and does a lot to raise awareness and funds for research. It was through his efforts that I originally heard about ALSTDI. He's started a new blog called Sh%* No One Has Said About ALS. In his first post, he writes "ALS sucks, so let’s...

Hello All: I have been blessed with the opportunity for free travel to participate in a documentary called Apparition Hill - "apparitionhill.tv". I hope I can adequately represent our community and help to raise awareness. I'm wondering if anyone knows of anywhere to get travel insurance for...

I'm on another ALS group on the internet and this came to our attention. Here is a picture.... If you google "What is ALS", this is what comes up. They declare it is a MANAGEABLE DISEASE, and treatment can help! Who are these morons at google? There is an option to respond if you feel so...

My husband was diagnosed with ALS in the Fall of 2012. After 6 months of testing and treatment it was determined he did not have ALS but instead had IBM - Inclusion Body Myositis which mimics ALS without the tragic ending of death (although some IBM cases do sadly end in death as well). We...

Today I saw a billboard that said " help us cure ALS". I don't think that would have happened a year ago. There was a website for donations but I could not read it in time to see what organization. It was on the main road that connects my small town with our larger neighbor so it gets a lot of...

Well folks, especially Nikki, Tillie, Dusty, Clearwater AL and skipper, who have been so gracious as to put up with my previous DIHALS posts, I may have finally zero'd in on a diagnosis. First off, I want to thank you guys from the bottom of my heart for responding to me. Honestly, you guys...

This is part of a fundraising letter from my neurologist ( this is the first time I have received one and I donated to them on more than one occasion so I did not mind at all getting it) I think I removed all fundraising parts but thought the rest might be of interest We, at the Massachusetts...