awareness

Hello All, I am new to the community and I do not have ALS. I do however have extreme panic and anxiety disorder and hypochondria. On my relentless search for answers I have read countless articles and stories of PALS. I just want to take a second and thank you for all of the time and effort...

1. Don't fall and don't take risks that might lead to a fall. 2. Get other conditions treated early. I have hemorrhoids and should have had them taken care of last Spring. Now I'm in so much pain and still have them. 3. Understand progression rates can and do change 4. Get a local...

My sister just had her 14th severe fall this weekend, and each time she falls with no warning and lands flat on her face. She has sustained bruises and lacerations previously, but this time she fell hard enough on her temple to make her woozy and disoriented (but not unconscious), so they took...

I went by myself today to see the Gleeson movie. I must say, it was the most heart warming movie I have ever seen. it is mixed with humor and sadness. I think I cried the majority of the movie but it did not matter since I was the only one watching it. It was an early movie. Steve's attitude...

My PALS has a friend that wrote about him on Chronically You... He added some things that he wanted people to know about how ALS is affecting him. I am attaching the link if anyone wants to take a look. https://chronicallyyou.wordpress.com/2016/08/03/als-august-and-the-ice-bucket-challenge/

I'd like to preface this by saying I am a self-proclaimed lurker on this site who also just endured what to me, in my limited little world, would consider to be the worst three weeks of my life. Out of respect for those who have a confirmed dx of this terrible disease, I never did dare to start...

Special thanks to Tillie for all her knowledge and formatting skills. I've already had interest from doctors, clinics, and other health care providers. They want copies. Here's the latest. Thank you to all on the forum who contributed. The hardest part was the personal interviews. I'm...

Hey I would like to introduce myself to this forum. My name is Shaun Kirman and i am 22 year old. I have just obtained my TV and Film degree in Grimsby, United Kingdom. For my final project i created an awareness short documentary based on MND, The reason for this is that my father has been...

Hi everyone. My name is Sarah, and I am nineteen years old. The last time I posted on here was about three years ago. My dad was diagnosed with ALS in June 2012, now three years ago. I found out on July 15th, 2012. I found out because I accidentally found a bottle of Rilutek, and I googled what...

There is no link in this post, which I copied from the ALSA Facebook Page. You can go there to find the link to register The ALS Association June 14 at 11:09am · Global ALS Awareness Day is Tuesday, June 21, and we’re commemorating the special day with a virtual listening tour event! People...