awareness

Hello everyone in here. First off I want to say that I have been lurking on here for a couple of weeks, and the courage I have seen from people here is beyond anything I would have expected from people in such difficult situations - all you who suffer from ALS or MNDs and all of you who have...

Hi, I was listening to a totally unrelated podcast yesterday which got me empowered to want to raise awareness in AU/NSW for MND. This morning the NSW govt. gave $2 mil (or more) to cancer research and 2 other diseases as well. My husband made a comment saying "thanks for leaving us out!"...

Hi Everyone, I've been lurking for a while now but decided to post today after my EMG results came back in. I would like to preface by saying that I really appreciate anyone's feedback. No matter the outcome of my situation, this process has really opened my eyes and encouraged me to get more...

Hello Care Providers, My name is Dakota and I am a freshman at Northern Arizona University. I am conducting research about ALS in the form of a case study, and I have some questions that I am hoping that some of you are able and willing (if comfortable) to answer. Here they are: What is the...

Hi All, On the 26th of this month i will be doing a fund raising walk for MND. As some of you may know, my husband was recently diagnosed with MND at 33yrs old. My heart broke the day we got the diagnosis for him, us, our future and everyone affected by MND. My heart is still broken and most...

Dear all, My name is Kay and I'm based in London. I am not an ALS sufferer but I found out about this disease by Anthony Carbajal's campaign to raise awareness about it. Most watch and even participate in the ALS ice bucket challenge but didn't take the time to actually understand the gravity of...

Please consider forwarding this post to any attorneys, doctors, OTs, PTs, RTs, or nurses who may be interested in volunteering for a new foundation--the ALS Action Foundation (ALSAF)--whose mission is to conduct research and promote education and awareness concerning the resources available to...

Hello, my name is Ralph Abercrombie. I lost my father to ALS a few years ago. He was the administrator at Tuomey Hospital in Sumter SC for more than 20 years. I'm writing a novel about his experiences. For the sake of accuracy, I need to know what steps might have been taken to diagnose ALS...

Hi all, My name is Mallic and I don't have ALS. After experiencing every ALS 'symptom' in the book I am happy to finally say that. In 2014 I started experiencing fasciculations which eventually spread over my entire body and I signed up for this website under a different alias. In 2015 I felt...

I tried to add this as a blog, but thought I would put it here as well. Three Years Today I celebrate the three-year anniversary of the worst day of my life. I was so scared that day, looking ahead to life in a wheelchair, giving up all independence, and being such a tremendous burden to my...