angry

My PALS, bulbar onset, diagnosed last December has been steadily declining both physically and cognitively. Back in April we enrolled in the LEFFTDS study at the Mayo Clinic because there was a possibility that he had familial ALS due to C9 gene mutation. As part of the study he did have a...

Hi All, I'm having a really down day and need some help... and probably hugs.. i don't know. Here's a bit about us: My husband had his first symptoms 5 years ago in his calf muscles. Since then it pretty much stayed where it started, calf muscles. His toes are slightly affected, his knees a...

Hello....A close friend has been diagnosed with bulbar ALS 4/2016. She has a wonderful husband, 2 parents close by, & 3 young adult children. One still in HS with my children. She & her family have kept her diagnosis private. She spoke to me about it July 2016. I have been honoring her...

Hi Guys! This is my first time ever on a forum so I would definitely appreciate any kind of guidance! So what brings me here...I'm a 23 y/o caregiver to my 51 y/o mother. She's been a PALS for about 4 years now. There are 6 of us in the family but my little sister and I are the main...

I was first diagnosed with ALS. But recently i was diagnosed with PLS. And im happier with that diagnosis if i have to have one but im 35. My upper body seems to failing no one understands and no one wants to talk about it I'm want to go to work I want to be able to volunteer in my children's...

Hi everyone, My daughter and I were going to fly out next month to see my dad again, but today my mom said hospice told her we needed to come sooner if we wanted him to know we were there...This is such b***s***!!! They think maybe a month and he will be gone.. I'm so angry and sad!!

Well okay not acting on all my rotten thoughts but thinking them. I finally got some sleep last night. Today though Brian wants a shower now, wants laundry now, keeps acting like I need to do more and do it faster. How I dare I watch TV? Laundry! How long will you be at the store he asks. Mind...

Hi there I am a 27 year old male back in January my body started doing really disturbing things, here are my symptoms - started with twitches/jerks that would move my entire body or just a limb/digit. Sometimes these are bilateral. - fasiculations in my entire body, They are very much...

Hi, The past week or so my husband will ask me to put on the Trilogy but after a few minutes he wants it off and I immediately have to suction him but he won't put it back on. I feel that he's asking for it for a reason but just a few minutes a day isn't going to help. He won't explain to me...

So I sold my house where my kids grew up(lots of angry tears there, thank you) and moved to a RANCH. Spending ALL my money renovating this ranch for my family. Putting in a basement apartment for my kids/mom and at some later point a home health care aid if a live-in is necessary. My question...