anger

Hi, Finally got approval to post :-D My brother has ALS, was diagnosed in December of 2010 (I think?).. I just found out last September - and from my father. Lots of stuff has transpired since I first applied for membership and my brother is no longer speaking to me - which is...

My husband and I have been married for 32 years. I wish I could tell you we have the "perfect" marriage, but I am a realist and know that isn't the case. What I can tell you is that I love him and never want to live without him. He has coped with PLS rather well, staying busy and positive and...

Ever find yourself wishing that you could for even just a moment make someone understand what it TRULY means to be a caregiver for someone with ALS ? On the rare occasion that I end up telling someone I'm not super close to about our situation, you get the tilted face, sad lip "I'm sorry" but...

There was a post on the forum about a week ago. I forgot who wrote it. But, it was from someone who had lost a parent a year ago and was having trouble coping since then. She stated she wasn't religious at all. If she doesn't have faith in God though she will never fully heal. She can go to...

Devil attacks with Motor Neurone Disease The devil has this accursed horrible disease He sneaks it into lives with such relative ease It eats away deteriorates peoples nerve ends Untold pain and great suffering this ever lends It gradually takes away absolute bodily use Make no mistake a...

I am so sorry for my outbursts yesterday. It was totally unfair to take my frustations and anger (yes anger) out on all of you. I know you know what I am going through and I just need to deal with it. Besides whining time is over thanks Nell

I think the most difficult thing to deal with, with my mom having als, is the way my dad treats her. She says he hasn't shown any kind of affection towards her--no kiss--since she got sick two years ago. She feels like he has broken his marriage vows--"in sickness or in health". He constantly...

Certain things really dig at me. I've tried a number of tactics today to subdue this anger and no success. At my husband's funeral we requested "in lieu of flowers" and gave the name of an organization that helped us tremendously. Basically, I am sent updated lists with names and addresses of...

My mother was diagnosed with ALS in Jan of 2010. Although all of her symptoms point to ALS, she refuses to accept that there is something wrong. In fact, she let me know we would not be discussing it any further and told me to go to hell the last time I mentioned it. I understand her anger...

I am new to this forum and to ALS and I would just like to say how much it gives me faith to see genuine support and advice being offered from people who are actually affected by this horrible disease. It shows how people can reach out to others and would just like to thank you in advance for...