anger

This is such an ugly and devastating disease. I can literally feel him winding down..beyond heartbroken...how do you come to say your dad and hero is dying?

Our hearts are completely broken. We lost my dad 2 weeks ago today. The visitation and service looked beautiful and perfect. Our emotions are every where one minute sad, denial and anger. I HATE ALS!! 7 months and he's gone.

I am crabby tonight. My husband is in pretty decent shape. A year out from diagnosis, he still walks with a can and can drive. I think that a walker and no more driving are coming up, I am encouraging these things now gently. Still we are I know fortunate. At a time when some PALS have already...

First off, hello everyone! This is only my second post to the ALS Forums. I have read/lurked a bit over the last ~6 months, but have stayed quiet while trying to process everything going on around me. To sum up my story as a "caregiver"... My beautiful wife and I married back in 2014 and had...

My mom passed away today after a long two years of holding on with ALS. I must say that even though I've read how this disease progresses and that there's no cure, I still thought that we had more time with her. Her sudden passing still feels raw and I'm sitting in my room across the hall from...

I feel like my Pals has lost his mind this week. His behavior is aggressive impatient paranoid and totally lacking empathy. I've seen this pattern before and then it goes away- it's probably been 6 months since the last "episode". Can it wax and wane like that in the earlier stages? He...

Good day everyone, I have joined the ALS society because well it is a cause that is near and dear to my heart. In grade 8 I wrote a paper on woman who asked for the right to die with dignity as this extremely painful degenerative disease took her life. Her story impacted me on so many levels...

My dad was diagnosed with ALS just over 3 years ago and those symptoms have been very slowly progressing. He was more recently diagnosed with FTD, and those symptoms are more of what we are seeing and his doctor's feel has been there before the ALS diagnosis was made. As my parents marriage is...

My brother, who I adore and love very much has just been diagnosed last month with ALS. Though I had strong suspicions, it was still crushing to hear it as official. I am simply devisated. Devistated for him, devistated for his wife and kids, devisated for our parents, and least of my concerns...

It's been some time since I've been able to make much of a post. I think of things I'd like to share, but then I just can't. What's that about? What is this part of the rollercoaster that leaves me not feeling. I think. I respond. I plan. But I don't seem to be able to feel. This past...