alsa

This time it is wheelchair add ons. Please act on this if you live in the US. Takes only a few minutes to send the form letter. You may customize if you want Home

Our PALs has been living with ALS for almost 8 years --- he is now to the point where is upper body, neck and breathing are the most affected. His legs still supported him but he had to move slowly. While caring for him on Friday, he got up to go to the bathroom. I walked him in, helped drop...

Do you really have ALS? A diagnosis of ALS or any other motor neuron disease (PLS, PMA, PBP, MMN) is made “by exclusion” (no higher probability presents itself) and by published criteria, most critically symptoms and muscle/nerve tests. Doctors may legitimately differ on whether you have...

That was Barb Long's FB post yesterday, that Jeff is now with Jesus. Jeff's is the first public message to my account; he lead us to our wonderful PVA rep, and as a result helped us in so many more ways. We were fortunate to meet Jeff, Barb, and their beautiful daughter Kaylee two years in a...

It's probably been a year since I last posted here, so the old thread is probably locked and I started this new one, just to tell I've been slowly updating my ALS mind map at espresso MindMap This time I also uploaded a jpeg that is easier to pan and zoom but lacks the links...

I copied some statements (below) about life expectancy. Here’s what I think I know from the doctors and from helping my wife as she progressed: In ALS, death usually comes from impaired breathing, especially aspiration pneumonia due to swallowing problems. If the patient lives long enough...

We found this post on the ALS website. CAn anyone tell me anything about the last paragraph that talks about the laptop ventilator. My Story - The ALS Association

Russell Wolfe, who produced the movie God's Not Dead, went to Home his Heavenly Father on May 27th. He was married with 2 kids. I was blessed to meet him at our local ALSA Day of Hope event and we co-won best t-shirt.

This week there are several advocacy events ... a.) ALSA Advocacy Conference -- Here's the attendee packet. b.) Hope Now for ALS Rally -- Here are details. I hope that people attending a.) will stop by for b.) (Which is about much, much more than GM604. It's about faster paths to get...

I'm on another ALS group on the internet and this came to our attention. Here is a picture.... If you google "What is ALS", this is what comes up. They declare it is a MANAGEABLE DISEASE, and treatment can help! Who are these morons at google? There is an option to respond if you feel so...