Hello everyone, just want to say I am a firm believer of Jesus. So my symptoms started as having a hard time taking a deep breath and gasping for air. I went to the ER they took a chest xray and said it was asthma, they prescribed me a 6 day supply of steroids and sent me on my way. I took the...
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I want to preface my first post here to say that my concern has led me to investigate about ALS in a way that makes me feel a deep sympathy for everyone affected by ALS (whether in his/her own flesh, or through a family member.) I also want to help those who make this forum possible.
I will...
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Chally’s spirit left his body as he slept in the early morning hours of Wednesday April 3rd. He continued to live his life to the fullest despite ALS wrecking his body bit by bit.
This forum and all of you were so important to him. He talked about this community of friends every day.
He was...
Hi there everyone,
I'm a little bit nervous to post this, naturally, and do want to say I hope I'm not upsetting anyone in doing so. The people on here seem absolutely amazing and I'd be appreciative of anyone to give me their personal opinion on this. Thank you so much in advance.
Most...
The CADTH (independent advisory body Health Canada consulted with) has published its recommendations on Edaravone use in Canada based on their research and consultations with ALS patients, caregivers and other health professionals.
From ALS Canada
The report can be found here...
I will try to make this brief.
Symptoms:
*. Muscle twitching: started out in a few places about a month ago. Then increased all over. Now has decreased but in more specific spots (calves, thighs, abdomen, shoulder area). It seems almost as if the twitching is moving from lower body to...
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Hello,
I am worried that I might have ALS.
I am a 27 year old female.
My first symptoms began about 1 month ago with weakness in my arms. About 12 days ago I began having twitching throughout my body. The twitching began everywhere including, arms, legs, hands, back, stomach, butt. Over the...
Hi Everyone,
My husband is 35 years old and has lost a cousin, an aunt, 2 uncles, (all to ALS) and currently watches his mom battle the final stages of ALS. His family carries the c9 gene.
Upon visiting with his mom over Christmas (they live out of state) and spending a week surrounded by ALS...
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Hi,
It started a week ago suddenly with right sided arm/leg weakness that then went away and shifted to left arm/left only. After it shifted to my thigh piriformis and calf. There is occasional tightness too of course I looked up my symptoms and als came up and I'm really nervous. I'm just not...
Hi everyone, I hoping someone can help me,with advising on a super als/mnd specialist!
I live in Melbourne Australia, and I’ve been to quite a few neurologists, but I can’t seem to find anyone one with the title neuromuscular specialist for als/mnd
The simple fact is I’ve been having...