als

The CCALS topic for May. It looks like it is going to be about tube feeding - particularly Liquid Hope. It may be somewhat commercial but the concept of real food versus chemical formulas is something we talk about here a lot...

I have posted few times before. Sorry for posting again. I have muscle weakness, twitching, muscle atrophy, bad breathing problems. And I have new symptom that feels like my muscles. Are been paralyzed. They are extremely weak very weird weakness feeling. Can barely move them I know longer have...

Presented by Les Turner foundation. Go to their website it is the newest offering in their learning series. You can register. It will probably be recorded too

Another CCALS presentation. The speaker is from a program at mgh that helps PALS deal with this https://us02web.zoom.us/meeting/register/tZEvc--orjoqG93jVOmKhtacalRsb_6GNNeY

Epiphany. usually sudden manifestation or perception of the essential nature or meaning of something. (2) : an intuitive grasp of reality through something (such as an event) usually simple and striking. (3) : an illuminating discovery, realization, or disclosure. For many in the world, the...

Hi Everyone, Been a while since my last question. Hoping someone can help us out or guide us. My dad is in the late stages of ALS and is now living in a residence and having multiple panic attacks per day. This has been going on for the last 2 weeks and he is being brought back and forth from...

A year ago I started feeling numbness and tingling in my leg and burning sensation in my head I did a brain MRI which showed corticospinal tract hyperintensities which are biomarkers of Als. Neurologists said no Als and related my symptoms to anxiety but symptoms exacerbated a lot.later I began...

I recently came across this article and I'm freaking out now: https://www.ncbi.nlm.nih.gov/pubmed/11464925 Everything I've read on here says that widespread twitching is not indicative of ALS, but this article states otherwise. The worst part is that I had an emg last year that the neuro...

First off, my heart goes out to all of you. You are so incredibly brave and generous with sharing your time, experience and support. My husband walked into a neurologist's office with symmetrical muscle weakness and walked out with a diagnosis of ALS. Some background - My husband is 51 and...

Good evening, everyone, First off, I have been constantly amazed at the grace and promptness with which questions from anxious people here are answered, and in my time lurking over the last couple months these replies and stickied threads have been a huge resource. So thank you! I'm just...